Help Keep Costs for HIV Medication Affordable for Children and Families
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For 20 years, we have worked with children and families impacted by HIV and AIDS. We have watched them live through severe stigma. In addition, most of our families reside in low-income communities, where there is much to worry about beyond the daily challenges of HIV or AIDS. Because of this, we work to bring these deserving youth a sense of peace and belonging through our cost free summer camps and year-round support. We hear about the challenges they face when it comes to taking their medications and even affording them.
Today, HIV is not the death sentence it once was, but this is only true when prescribed mediation can be taken on a daily basis. Today this is being challenged. We are standing with other AIDS Service Organizations to help make a difference and "Let 340 B". Below is one letter I received to better explain what is happening. We hope you will sign our petition and stand with children and families impacted by HV/AIDS to keep the costs of their medications affordable.
Thank you in advance for your consideration!
Eva Payne, Executive Director of Project Kindle
Serving Children and Families impacted by HIV and AIDS since 1998 with cost free programs.
For more than 25 years, the 340B drug discount program has allowed safety net providers to purchase discounted drugs, allowing them to enhance their services to millions of low income and vulnerable patients. The statutory intent of the program is to allow 340B providers “to stretch scarce Federal resources as far as possible, reaching more eligible patients and providing more comprehensive services.” The undersigned patient and consumer advocacy organizations are compelled to speak out in strong support of the 340B drug pricing program. We stand together to oppose any efforts to diminish the 340B program’s proven ability to help serve vulnerable patients and communities.
340B is vital to the health care safety net as it enables trusted community providers to fulfill their missions. In many communities – particularly low-income rural and urban areas – safety net providers are the sole pathways to affordable health care. Safety net providers use 340B savings for direct health care services, drug adherence and management programs, and education and prevention programs, among many others, to benefit their patients and the communities they serve. These services are often geared towards mental health programs, HIV adherence programs, education and prevention programs, substance abuse treatment, holistic care for the disabled, integrated cancer care, care for those with serious chronic illness like kidney disease, and medication management, among others.
We are troubled by unfair assertions that the program has grown too large, suggestions that safety net providers are “profiting” from the 340B program, and allegations that safety net providers are not truly serving underserved patients. As advocates for patients and consumers, we support transparency in the program to ensure that 340B is meeting the needs of patients, but cannot support any proposals branded as enhancing “transparency and oversight” that would have the effect of reducing the number of safety net providers in the program and, in turn, the number of patients served.
As policymakers prepare to consider changes to the 340B program, we urge Congress to reject any proposals that would have the effect of:
• Limiting access to affordable, clinically appropriate, pharmaceuticals for low-income, uninsured, underinsured, and other vulnerable patients
• Reducing access to care by cutting safety net providers out of the program
• Curtailing the ability of providers to use 340B savings to reach more eligible patients and provide more comprehensive services
We are committed to patients and recognize the fragile nature of our nation’s safety net. We ask that you join us in supporting, not weakening, the 340B program.
Today: Eva is counting on you
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