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NYS Medicaid: Approve the treatment for Baby Jax in Minnesota

This petition had 2,881 supporters

My son Jax was born on August 20 2011 with an extremely rare and life threatening skin condition called Epidermolysis Bullosa or EB for short. His prognosis was not good, he was in the hospital more than he was home for the first year of his life. His only hope at life would be from a life saving Transplant only offered at the University Of Minnesota Amplatz Children's Hospital. He received a life saving Bone Marrow/Stem Cell transplant on July 13 2012 to treat his condition. He survived the transplants and was recovering at home while recently he began to get very sick again. He requires multiple transfusions several times a week at a hospital about 1 1/2 hours away from home while he remains in critical condition. My son and I opted to stay at the Ronald McDonald House nearby the hospital so he can continue to receive these treatments just to keep him alive. Jax's transplant team is considering a second Bone Marrow/Stem Cell transplant or other treatments to save his life, but the only thing stopping this is insurance approval. The treatment would have to be done in the hospital where he first received treatment in Minnesota with his transplant team, however Jax has NYS Medicaid and we NEED approval now. Please sign this petition to save my son's life! You can read more of my son's journey thus far at

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