

Guarantee that our physiological long covid will be treated with scans, tests & medicines
The Issue
Increasing publications are being circulated by academics who are proposing CBT/GET for long covid patients. This treatment, which is not evidenced based and has been proven as failed research for ME/CFS patients has been proven as dangerous for both them and long covid patients (with patients reporting heart attacks). We the long covid patients want a guarantee that physiological illness will be investigated (alongside research for unhospitalised victims) and treatments trialled. So far little discussion is taking place on scans, tests and medicines, despite a huge number of research projects proving that there are various treatments for organ damage such as myocarditis and hyaluronic acid jello deposits in the lungs. Likewise, treatments exist for joint pain, dysautonomia and ME/CFS as well as thyroid issues (amongst many others) we are seeing in thousands of patients.
We the long covid patients have waited over 7-8 months typically now and are expecting diagnostic tests, scans and clinical support. Whilst some patients may warrant mental health support, this has largely been due to being ignored, locked away, disbelieved and told we are suffering anxiety/mass hysteria. We would like a guarantee that our very physiological illness (chronic long covid group have catalogued the illness since the outset and have documented over 182 effects so far which are almost entirely physical). Coverscan project supports our theory that many of us have both internal organ damage and the photobank and documentation provided by chronic long covid group show the external effects. This is a very physiological illness and we are not prepared to accept biopsychosocial treatments as the way forward to getting us support or better.

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The Issue
Increasing publications are being circulated by academics who are proposing CBT/GET for long covid patients. This treatment, which is not evidenced based and has been proven as failed research for ME/CFS patients has been proven as dangerous for both them and long covid patients (with patients reporting heart attacks). We the long covid patients want a guarantee that physiological illness will be investigated (alongside research for unhospitalised victims) and treatments trialled. So far little discussion is taking place on scans, tests and medicines, despite a huge number of research projects proving that there are various treatments for organ damage such as myocarditis and hyaluronic acid jello deposits in the lungs. Likewise, treatments exist for joint pain, dysautonomia and ME/CFS as well as thyroid issues (amongst many others) we are seeing in thousands of patients.
We the long covid patients have waited over 7-8 months typically now and are expecting diagnostic tests, scans and clinical support. Whilst some patients may warrant mental health support, this has largely been due to being ignored, locked away, disbelieved and told we are suffering anxiety/mass hysteria. We would like a guarantee that our very physiological illness (chronic long covid group have catalogued the illness since the outset and have documented over 182 effects so far which are almost entirely physical). Coverscan project supports our theory that many of us have both internal organ damage and the photobank and documentation provided by chronic long covid group show the external effects. This is a very physiological illness and we are not prepared to accept biopsychosocial treatments as the way forward to getting us support or better.

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Petition created on November 8, 2020