Recognize and Treat Our Disease

Recognize and Treat Our Disease

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Sharon Wolfe started this petition to National Institutes of Health

 

 

I am writing you on behalf of myself and hundreds of thousands of other people from all over the United States. I have met some personally and through social media groups that have formed to deal with this. It is a contagious disease that has been labeled “delusional parasitosis” by the medical community. This is not a mental disorder, we are not delusional and this is not Morgellons. Our condition is real and debilitating. We have some kind of parasite that is making us very sick. This could become a pandemic just like Covid 19 if left untreated and not addressed.

 

People have died from this. Unfortunately, their cause of death is written as some other medical condition. These parasites are biting us, spreading, penetrating deeper into our skin and tissues, eating our flesh, causing horrific pain in our muscles, joints and elsewhere. They are leaving open sores, causing infections and disfiguring us. Our hair is falling out. It is causing eyesight problems. It is a devastating health problem and financial hardship. Many have lost their jobs and exhausted their savings trying to get help. We are suffering, afraid and hopeless. I have suffered for  four years and each year I become worse because, as their host, they multiply and hurt me. I am becoming crippled by them. I have lost the ability to use my hands and arms properly, and I am losing my ability to walk.

 

Many believe that something in our immune systems cannot fight this off. I contracted this from family members who all recovered except myself. I was diagnosed with an immune deficiency by an immunologist in Fairfax,Virginia. I was also diagnosed with a parasitic infestation by a general physician who referred me out. But no doctors would treat me because they did not know what to do, or claimed I was “delusional” which is not true and cannot continue to be dismissed as such.

 

We are urging you to investigate, treat and eradicate this disease. It has been ignored far too long and has to be taken seriously and recognized as a neglected disease. We appreciate your global efforts to eradicate parasitic diseases, but we are being ignored. NIAID needs to make this a priority. The Laboratory of Parasitic Diseases has many techniques available to identify this. We need your help before we get sicker, before it spreads to more people, or worse, before more people die from it. Myself and others are willing to be candidates for research on this disease. We thank you for listening to us and taking action.

 

 

 

 

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At 500 signatures, this petition is more likely to be featured in recommendations!