Petition Closed
Petitioning National Institutes of Health

Provide increased funding for research to cure rare eye diseases.

As part of the ongoing effort to raise awareness about retinal degenerative diseases, the Foundation Fighting Blindness joins organizations around the globe in observation of World Rare Disease Day: Wednesday, February 29, 2012. This collaboration will focus attention on the needs of patients and families affected by rare diseases, highlighting lesser-known conditions as a public health issue.

Most of the conditions the Foundation is working tirelessly to cure are considered “rare” because they affect less than 200,000 Americans. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases affecting around 30 million Americans (about 1 in 10 people). The Foundation’s website offers disease information and research updates related to the following rare retinal diseases, which collectively affect approximately 200,000 Americans and stem from defects in about 200 different genes:

Retinitis pigmentosa
Stargardt disease
Usher syndrome
Leber congenital amaurosis (LCA)
Retinoschisis
Choroideremia
Best disease
Cone-rod dystrophy
Bardet-Biedl syndrome
Refsum
Rod-cone dystrophy
Oguchi disease
Malattia Leventinese
Blue-cone monochromacy

Letter to
National Institutes of Health
I just signed the following petition addressed to: National Institutes of Health.

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Provide increased funding for research to cure rare eye diseases.

As part of the ongoing effort to raise awareness about retinal degenerative diseases, the Foundation Fighting Blindness joins organizations around the globe in observation of World Rare Disease Day: Wednesday, February 29, 2012. This collaboration will focus attention on the needs of patients and families affected by rare diseases, highlighting lesser-known conditions as a public health issue.

Most of the conditions the Foundation is working tirelessly to cure are considered “rare” because they affect less than 200,000 Americans. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases affecting around 30 million Americans (about 1 in 10 people). The Foundation’s website offers disease information and research updates related to the following rare retinal diseases, which collectively affect approximately 200,000 Americans and stem from defects in about 200 different genes:

Retinitis pigmentosa
Stargardt disease
Usher syndrome
Leber congenital amaurosis (LCA)
Retinoschisis
Choroideremia
Best disease
Cone-rod dystrophy
Bardet-Biedl syndrome
Refsum
Rod-cone dystrophy
Oguchi disease
Malattia Leventinese
Blue-cone monochromacy

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Sincerely,