MND/ALS It's 2025. Let's crack it!
MND/ALS It's 2025. Let's crack it!
The Issue
It's 2025. Most diseases previously thought to be incurable like HIV and Polio have effective treatment and cure. MND has been left behind. Our last drug development was some 30 years ago, prolonging life by a mere 3 months! We need funds, science and new solutions.
CRUMBS CAMPAIGN LAUNCH VIDEO: YouTube Link
UK PETITION LAUNCH VIDEO: YouTube link
Next to the Global petition on Change.org we have now launched a UK Petition (on this link) and Campaign, as above, to reach 100,000 signatures so that we can bring MND funding into Parliamentary debate in the UK.
YouTube - 9th March update, 2 weeks of campaigning
Mili & Andy's MND Journey Facebook Page
SKY News Interview 26th Feb 2025
Contact: MNDJourney2025@gmail.com
Two thousand people die of motor neurone disease in the UK every year. But because of gross underfunding of research, we still have no cure.
Andrew Davies was diagnosed with the disease last year and is already suffering from it's effects; his muscles are weak and he's only weeks from being wheelchair bound. His diagnosis has handed him a death sentence and left the rest of his family in emotional and financial turmoil. Andrew and his wife Milica's biggest concern is their children. They, aged 14 and 12, have to face growing up without a father, and are at greater risk of getting this disease themselves because of Andrew's diagnosis. The only way to banish this shadow darkening the children's lives is by finding a cure.
At the moment, MND gets a fraction of the funding other diseases receive, which is constraining research. There has been no progress towards a cure since the 1990s, when a drug which extends life by a few months was developed. In the decades since, we've almost eradicated diseases like Polio and HIV, so why has no progress been made on MND? Patients like Andrew Davies are being ignored and left for dead.
The only way we end this nightmare is by finding a cure. Let's bang the drum for more funding for new, novel drugs so we can banish MND for good. Let's try and make this the last cohort of patients to ever have to die from this disease. We need survivors. Andrew, Milica, and so many others who have suffered, will thank you.
Petition Shorts Video - YouTube
9,131
The Issue
It's 2025. Most diseases previously thought to be incurable like HIV and Polio have effective treatment and cure. MND has been left behind. Our last drug development was some 30 years ago, prolonging life by a mere 3 months! We need funds, science and new solutions.
CRUMBS CAMPAIGN LAUNCH VIDEO: YouTube Link
UK PETITION LAUNCH VIDEO: YouTube link
Next to the Global petition on Change.org we have now launched a UK Petition (on this link) and Campaign, as above, to reach 100,000 signatures so that we can bring MND funding into Parliamentary debate in the UK.
YouTube - 9th March update, 2 weeks of campaigning
Mili & Andy's MND Journey Facebook Page
SKY News Interview 26th Feb 2025
Contact: MNDJourney2025@gmail.com
Two thousand people die of motor neurone disease in the UK every year. But because of gross underfunding of research, we still have no cure.
Andrew Davies was diagnosed with the disease last year and is already suffering from it's effects; his muscles are weak and he's only weeks from being wheelchair bound. His diagnosis has handed him a death sentence and left the rest of his family in emotional and financial turmoil. Andrew and his wife Milica's biggest concern is their children. They, aged 14 and 12, have to face growing up without a father, and are at greater risk of getting this disease themselves because of Andrew's diagnosis. The only way to banish this shadow darkening the children's lives is by finding a cure.
At the moment, MND gets a fraction of the funding other diseases receive, which is constraining research. There has been no progress towards a cure since the 1990s, when a drug which extends life by a few months was developed. In the decades since, we've almost eradicated diseases like Polio and HIV, so why has no progress been made on MND? Patients like Andrew Davies are being ignored and left for dead.
The only way we end this nightmare is by finding a cure. Let's bang the drum for more funding for new, novel drugs so we can banish MND for good. Let's try and make this the last cohort of patients to ever have to die from this disease. We need survivors. Andrew, Milica, and so many others who have suffered, will thank you.
Petition Shorts Video - YouTube
9,131
The Decision Makers
Supporter Voices
Petition created on 21 February 2025