Make IV Fluids a Viable Treatment Option For PoTS patients In The UK

The Issue

 

My most recent injury cae

My most recent injury caused by a bad faint whilst rushing back to bed from the toilet. It’s so sore.

 

 

Had a bad fall today. I am going down hill rapidly since my infusions got stopped. This is just cruel and needs to change.

 

 

As of 2nd July 2023 York Hospital Drugs and Therapies Committee are withdrawing saline infusions as a treatment for Postural Orthostatic Tachycardia Syndrome ( PoTS).

 

This is not just happening here in Yorkshire, but all over the UK. These infusions can be life changing for people but many are not even given the chance to try them. 

These infusions are much more affordable and will definitely be a lot more cost effective, due to patients not having them and needing to call Ambulances, time spent in hospital, Scans & X-Rays. This will cost the NHS more than it will giving patients these infusions

Those affected suffer terrible symptoms daily: Brain fog, fainting, headaches, palpations, chest pains, gastro issues, dizziness, unregulated temperature, low energy to name but a few. In some cases medication alone can help patients manage their symptoms but for a lot of patients medication just isn’t suffice. It’s in these cases, that IV Saline Infusions must be made available. When a patients benefit outweighs the risk. To leave a patient struggling is simply cruel and inhumane

These infusions eradicate a lot of the symptoms, meaning people are less likely to need medical intervention in A&E departments.  Without the infusions many patients will be bed bound, need more medical support and even the easiest of daily tasks will be unachievable.


We need to act now! By signing this petition you are showing your support, giving a voice and proving your willingness to help a group of people, too ill to shout loud enough for the government to hear.
This petition needs to be heard! Act now and help those who cannot act for themselves.

1,136

The Issue

 

My most recent injury cae

My most recent injury caused by a bad faint whilst rushing back to bed from the toilet. It’s so sore.

 

 

Had a bad fall today. I am going down hill rapidly since my infusions got stopped. This is just cruel and needs to change.

 

 

As of 2nd July 2023 York Hospital Drugs and Therapies Committee are withdrawing saline infusions as a treatment for Postural Orthostatic Tachycardia Syndrome ( PoTS).

 

This is not just happening here in Yorkshire, but all over the UK. These infusions can be life changing for people but many are not even given the chance to try them. 

These infusions are much more affordable and will definitely be a lot more cost effective, due to patients not having them and needing to call Ambulances, time spent in hospital, Scans & X-Rays. This will cost the NHS more than it will giving patients these infusions

Those affected suffer terrible symptoms daily: Brain fog, fainting, headaches, palpations, chest pains, gastro issues, dizziness, unregulated temperature, low energy to name but a few. In some cases medication alone can help patients manage their symptoms but for a lot of patients medication just isn’t suffice. It’s in these cases, that IV Saline Infusions must be made available. When a patients benefit outweighs the risk. To leave a patient struggling is simply cruel and inhumane

These infusions eradicate a lot of the symptoms, meaning people are less likely to need medical intervention in A&E departments.  Without the infusions many patients will be bed bound, need more medical support and even the easiest of daily tasks will be unachievable.


We need to act now! By signing this petition you are showing your support, giving a voice and proving your willingness to help a group of people, too ill to shout loud enough for the government to hear.
This petition needs to be heard! Act now and help those who cannot act for themselves.

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