- Danish Health and Medicines Authority (Sundhedsstyrelsen)Axel Heides Gade 1 2300 Copenhagen S Denmark
- Danish regional Office:Statsforvalningsen Midtjylland St. Blichers Vej 6 Postbox: 151 6950 Ringkobing
- County Office:Holstebro County – Mayor’s Office Rådhuset Kirkestræde 11 7500 Holstebro Tlf. 9611 7500
- International Press Centre2, Vestergade, 2. floor DK-1456 Copenhagen K
- The Editorsdenmark.dk
- To Whom it may concernGammel Torv 22 1457 Copenhagen K. Denmark
- To whom it may concernNational Agency for Patients' Rights and Complaints Denmark
- Denmark's Patient Ombudsman
Karina is a severely ill ME sufferer forcibly removed from her home
Thank you for helping Karina
Karina Hansen, is a severely ill ME/CFS sufferer forcibly removed from her home, against her will, by Danish psychiatrists. Myalgic Encephalomyelitis (ME/CFS) is an horrendous, debilitating and physical illness, which leave the sufferer in terrible agony and extreme exhaustion. And if mistreated, can and is fatal.
Here is a video about severely ill me/cfs patients like Karina
Please help, us raise awareness, for Karina's. By voting on the other e petitions, “liking” the facebook page and taking part in the letter writing campaign. Details of, which can be found on the facebook page
e petitions on causes.com,
and i petition “postcard for Karina”
Facebook page, Justice for Karina
You can also find us on: twitter @justice4karina, pinterest justice4karina, google + justice for Karina Hansen and linkedin
There is also a fuller explanation of me/cfs which the Danish Doctors, treating Karina, should have read, is in the link below.
And finally a little bit about me and why I know what the Doctors are doing is wrong
I was born in Jerusalem. The Doctors and Nurses, not being accustomed to light haired babies thought I looked bald and called me Kojak. And years later, when every they saw me they would greet me with a huge smile, arms out stretched saying “ah Kojak” and would give me a lolly pop (who loves ya, baby). I have lived all over the worlds in Israel, Pakistan, Kashmir, Honduras, El Salvador, Guatemala, Scotland, England and Mexico. I gained my Duke of Edinburgh's award whilst at School in the Highlands of Scotland, before going on to become a PADI dive Instructor in Mexico. Finally completing my education with a degree from University
Before the illness, I was very fit and healthy, Playing Rugby, Field Hockey, Tennis and running middle distance for fun and with ease. Until, in 2011 a series of minor events culminating in the worst flu of me life, lead me to develop severe ME. I felt I would die at any moment, and being in the countryside, I decided to struggled to the GP's surgery. Feeling that if I was going to die I may as well die there as anywhere.
So I had go, in an instant, from being very fit, strong and healthy, with an athletic heart. To being close to death, with high blood pressure, high heart rate, palpitations, extreme exhaustion and weakness, seizures, shaking, pain so bad I wanted to rip my chest open just to relieve it, adrenalin like white hot poison in my veins, lightning flashes and white blotches in my vision, a feeling of having a swollen brain and spinal cord, an electrice strom in the back of my head, cognitive difficulties, to name, but a few. However, when I saw the GP he became irritated and said “it's probably viral”. I don't know how I have survived to write this account, let alone know how I managed to get home that day, but I did. For the next four months I struggled back and forth, seeing different Doctors, and all I got from each was “it's probably viral”.
By Christmas 2011 I felt so ill and my organs hurt so much I thought they would shut down completely. So I struggled back and was seen by a new Doctor, who immediate diagnosed me. Nevertheless, over the next months I was given no help, whatsoever from the GP's even having to ask for particular tests to carried out. And my GP would simply say “oh yeah that would be a good idea wouldn't it”. In the end I gave up on them, as the trips only made me sicker. And I learnt as much as I could from other sufferers and the internet.
During those first weeks, I was so ill I could do nothing, but rest and I did begin to recover a little. So I took the opportunity to continue exercising, going for walks whenever I could. Unfortunately, that was the worst thing I could have done, as it only made me relapse, which would make me worse and worse. Until, finally, I was even more severely ill than I had been at the beginning. I ended up bedbound for 8 months with every symptom in the book and a higher heart rate and more exhausted than I had been while out running. I was also so weak that when I did struggle out of bed, I couldn't even left an empty kettle. And was reduced to shuffling, or crawl round the house, like a sickly ninety year old man.
Thankfully, I've learnt a lot about the illness and how best to treat it, recovering a great deal in the last 6 months. So that now the illness is just unpleasant, rather than life threatening. However, if I'd known then what I know now. And if I'd rested instead of exercised, I'm sure I would been much close to recovery by now. And the illness wouldn't have been anything like as bad as it turned out to be. That is why I know, what Karina's Doctors are doing is wrong. And that Doctors like them, all over the world, must be made to take ME seriously, before they end up killing anymore sufferers. And they must look at the scientific evidence and not just ignore specialists simply, because it doesn't suit them. This could happen to anyone and has happened all to frequently in the past. With illnesses MS, polio and so many others that were all thought, by misguided Doctor, to be all in the mind. Until the over whelming weight of evidence forced them to admit the truth. I can even happen with Cancer. As my Auntie found out, when her GP diagnosed her with depression and then IBS. When it was actually Cancer. Cancer that didn't show up in any of the scans
- Axel Heides Gade 1 2300 Copenhagen S Denmark
Danish Health and Medicines Authority (Sundhedsstyrelsen)
- Statsforvalningsen Midtjylland St. Blichers Vej 6 Postbox: 151 6950 Ringkobing
Danish regional Office:
- Holstebro County – Mayor’s Office Rådhuset Kirkestræde 11 7500 Holstebro Tlf. 9611 7500
- 2, Vestergade, 2. floor DK-1456 Copenhagen K
International Press Centre
- Gammel Torv 22 1457 Copenhagen K. Denmark
To Whom it may concern
- National Agency for Patients' Rights and Complaints Denmark
To whom it may concern
- Denmark's Patient Ombudsman
Dear Sir or Madam:
I am writing to you concerning the treatment being offered in Denmark to those suffering from myalgic encephalomyelitis (ME). In case you are unfamiliar with ME, it is a debilitating physical illness that has been classified as a neurological illness by the World Health Organization since 1969.
It has been brought to my attention that a young woman with myalgic encephalomyelitis named Karina Hansen has been forcibly removed from her home on February 12, 2013 for treatment she did not choose.
Karina is at Hammel Neurocenter and being treated by Nils Balle Christensen, a psychiatrist with The Research Clinic for Functional Disorders and Psychosomatics. Karina's parents have not been allowed to visit her despite the fact it is not permitted to prevent relatives from visiting their family members in the hospital in Denmark. It is my understanding that human rights are to be given the highest priority.
You can find more details regarding Karina Hansen's situation at ME Association, Denmark's Facebook page at https://www.facebook.com/meforeningen.dk/notes and http://tinyurl.com/nmvpgkn.
This situation prompts many people around the world to ask:
1. Does Denmark recognize the World Health Organization code for ME?
Please note that benign myalgic encephalomyelitis is coded as G93.3 in the chapter entitled "Diseases of the Nervous System" under the subheading "Other disorders of brain." To further clarify, myalgic encephalomyelitis is listed under diseases of the nervous system and NOT mental and behavioural disorders.
It is my understanding that any country that accepts the WHO Regulations for nomenclature is obligated to accept the ICD classification. If Denmark accepts the ICD classification of ME as a neurological illness, than why are doctors who specialize in mental and behavioural disorders in charge of an ME patient's treatment?
2. What is the recommended treatment for ME patients in Denmark?
Myalgic encephalomyelitis can result in death without proper treatment. One well-known case is that of Sophia Mirza in England. You can find more information about her death at http://investinme.org/Article-050%20Sophia%20Wilson%2001-RIP.htm
3. Do ME patients in Denmark not have the right to choose which treatment to receive? Also do they not have the basic human rights of visitation with their family?
4. Who monitors experimental treatments to be certain that no basic human rights are being denied in cases such as these?
In order to help you understand the many challenges someone with ME faces, I would like to share my personal experiences of dealing with ME. (Please add your personal experience with ME and possibly any problems you have suffered resulting from any wrong treatment you have received)
Many people around the world are concerned with Karina Hansen's treatment and have signed petitions in support of her. They can be found at change.org http://tinyurl.com/p55nxdp , causes.com http://tinyurl.com/au3c7t4 and ipetition.com http://www.ipetitions.com/petition/postcardtokarina/ .
A video has also been made to spread awareness of what Karina is facing and can be seen here at http://www.youtube.com/watch?v=Dk3e8IWj7M0 .
All of these things show that Karina Hansen and her family have a world of support!
I ask that you please do all within your power to have Karina Hansen's human rights restored and see that she has proper treatment for myalgic encephalomyelitis.
I understand you cannot answer any questions about Karina Hansen's case, but I would appreciate answers to the general questions about the treatment of ME patients in Denmark.
I would appreciate your prompt attention to the matter. Thank you for your consideration.
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