My name is Kim Lewis and i was diagnosed with ALS in February 2016. I have been having symptoms since January 2015 which started with pins and needles in my left hand. It really has been an awful year not knowing what this could be, but ALWAYS in the back of your mind wondering "could it be". Then you hear the devastating news that it is. Your world falls apart as does your families too.
I am 45 years of age with an amazing husband who loves me unconditionaly and who's life has been turned upside down by this disease. I have a son of 20 and a daughter of 18 who's lives have been shattered but who get on with their life's the best way they can knowing that their mother has this horrendous disease. I should be getting excited about watching my children getting married, becoming a grandparent and looking forward to making memories with the one's that mean everything to me.
I want to see more being done to find treatments for this disease. Giving us ALS sufferers a chance to try treatments and get these treatments passed quicker to give everyone a chance in life with this disease.
Please Justin Trudeau make this happen, put more money in to treatments and pass these new medications (which we know are there but need to be passed for use). Please be the one to help save us.
Adaptive canuck ALS stem cell research needs help to get the stem cell treatment going sooner rather than later PLEASE HELP.
We need help with accelerating treatments/trials into ALS patients.
Who wants to live life the way it should be lived with no restrictions.