Petitioning Secretary of State for Health Jeremy Hunt MP Secretary of State for Health and 5 others

Give Back Childhood Lives! Fund More Research into DIPG Brain Tumours No Child Survivors!

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On a normal day in April last year, my dear friend's daughter, 6 year old Kaleigh, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG).  This was the day that completely shattered Kaleigh's and her family’s world to pieces forever!

DIPG is a rare and inoperable brain tumour which is extremely aggressive.  It is the MOST FATAL form of brain cancer with NO EFFECTIVE treatment or known cure!  DIPG primarily affects children between 5 and 10 years of age, with a median survival rate of just 9 months.  Every 9 days a child in the UK is diagnosed with DIPG.  Just 1% of the national spend on cancer research has been allocated to brain tumours!

Kaleigh has successfully completed her 30 sessions of palliative radiotherapy back in June 2016, it has managed to shrink the evil tumour and hopefully will give her some time.  Her family is now desperately looking for a miracle cure that could save her life!

Despite Kaleigh's family's tragic situation, they are bravely campaigning to raise awareness and to improve Government funding for more research into DIPG.  Other cancer research has improved survival rates over the years but the lack of funding for DIPG means there has been no improvement in this specific area for over 50 years.

Without funding for more research into this devastating illness, there is no future for the children and families that are suffering today, tomorrow and in the future.

  • UK Government needs to commit more funding to Brain Tumour research (including DIPG)
  • Advise how much funding will go to paediatric BT research
  • Advise what immediate action they are going to take
  • Advise on a programme to achieve their deliverables
  • Provide more DIPG clinical trials in the UK.

Please sign this Change.org petition now, to help our fight against DIPG and to convince the UK Government to consider all the above.
Kindly share this with your friends and within all your social media circles globally!

LATEST:
Kaleigh's parents would like to express their deepest gratitude and appreciation to all the supporters of their recent HOC Petition, which sadly ended on 03/12/16.  Unfortunately it did not reach the required target to have it debated in Parliament!

So please seek it in your heart to submit your signature and kindly share this vital Change.org petition Worldwide, as this would greatly give us and all other DIPG suffering families a massive morale boost and a desperately needed glimmer of hope! 
"Save the Dream, Save the Children!"


You can follow Kaleigh's progress on the following links;

Twitter: @kaleighstrust

Facebook: https://www.facebook.com/Kaleighstrust/

Website: http://www.kaleigh.ethanet.co.uk

Kaleigh's Donation site: https://www.chuffed.org/project/kaleighs-trust

Please help, we will be extremely grateful for all your support however big or small!

This petition will be delivered to:
  • Secretary of State for Health
    Jeremy Hunt MP Secretary of State for Health
  • NHS
    Cally Palmer NHS National Cancer Director England
  • NHS
    Dr Rachael Hough NHS Children & Young Adult Cancer Service Chair
  • UK Parliament
    Ed Jones Special Advisor to Jeremy Hunt MP
  • NHS
    Prof Chris Harrison NHS National Clinical Director for Cancer England
  • Prime Minister of the United Kingdom and Leader of the Conservative Party
    Theresa May MP

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