

Fund a life changing operation on the NHS ! SDR Changes Lives of 100's of Children !


Fund a life changing operation on the NHS ! SDR Changes Lives of 100's of Children !
The Issue
www.petition.parliament.uk/petitions/109580
Selective Dorsal Rhizotomy (SDR) is a neurosurgical procedure aimed at reducing spasticity (tight and stiff muscle tone) in the lower limbs. It's most commonly used for children with spastic diplegia (two limbs affected) which accounts for 25 to 30% of children born with cerebral palsy.
My son was born at 32 weeks on the 31st May, 2012 & at the age of 1 he diagnosed with a form of Cerebral Palsy called Spastic Deplegia.
2 years ago we discovered that this miracle operation to reduce the pain and spasticity in his legs was available on the NHS. We went for a assessment at Great Ormond Street Hospital to have SDR surgery to be told he was a excellent candidate but to be told shortly after the funding for this operation has been withdrawn by NHS England weeks before.
We then had the agonizing ordeal to raise £50,000 so my son could have the operation and aftercare he desperately needed to be able to live with out pain and to walk unaided.
My son James is now 5 weeks post-op from SDR and is pain free, can stand unaided and today he took his first unaided step.
My fight continues to get this operation available on the NHS for every child who needs it. No child should have to live in pain & be refused this life changing procedure.
I have seen first hand how this miracle operation can change a child's life. No family should go through the pain and stress of seeing your child in pain every day and having to raise money for surgery they desperately need.
Also families all over the country could finally get answers. My hope is that the funding would be put back in place which will be a big leap forward for children with Cerebral Palsy and the chance of a independent future without pain.
I feel like we are being shut out and silenced. I have had to fight a long and hard battle to get my son the right treatment he needs. I now want to fight for others who have not been given the opportunities me & son have had. I dont want any family to have to go through what we have and it breaks my heart following other families who about to embark on the same journey I started 2 years ago when I started my fundraising appeal.
We all need answers and it's time for change.
I would be ever so grateful if you could reply with your views & what steps you will be taking to make SDR accessible for children who need this operation.
This operation has enabled my son to live without pain. He smiles constantly now and no longer cries in pain every day.

Vicki MillsPetition Starter
This petition had 623 supporters
The Issue
www.petition.parliament.uk/petitions/109580
Selective Dorsal Rhizotomy (SDR) is a neurosurgical procedure aimed at reducing spasticity (tight and stiff muscle tone) in the lower limbs. It's most commonly used for children with spastic diplegia (two limbs affected) which accounts for 25 to 30% of children born with cerebral palsy.
My son was born at 32 weeks on the 31st May, 2012 & at the age of 1 he diagnosed with a form of Cerebral Palsy called Spastic Deplegia.
2 years ago we discovered that this miracle operation to reduce the pain and spasticity in his legs was available on the NHS. We went for a assessment at Great Ormond Street Hospital to have SDR surgery to be told he was a excellent candidate but to be told shortly after the funding for this operation has been withdrawn by NHS England weeks before.
We then had the agonizing ordeal to raise £50,000 so my son could have the operation and aftercare he desperately needed to be able to live with out pain and to walk unaided.
My son James is now 5 weeks post-op from SDR and is pain free, can stand unaided and today he took his first unaided step.
My fight continues to get this operation available on the NHS for every child who needs it. No child should have to live in pain & be refused this life changing procedure.
I have seen first hand how this miracle operation can change a child's life. No family should go through the pain and stress of seeing your child in pain every day and having to raise money for surgery they desperately need.
Also families all over the country could finally get answers. My hope is that the funding would be put back in place which will be a big leap forward for children with Cerebral Palsy and the chance of a independent future without pain.
I feel like we are being shut out and silenced. I have had to fight a long and hard battle to get my son the right treatment he needs. I now want to fight for others who have not been given the opportunities me & son have had. I dont want any family to have to go through what we have and it breaks my heart following other families who about to embark on the same journey I started 2 years ago when I started my fundraising appeal.
We all need answers and it's time for change.
I would be ever so grateful if you could reply with your views & what steps you will be taking to make SDR accessible for children who need this operation.
This operation has enabled my son to live without pain. He smiles constantly now and no longer cries in pain every day.

Vicki MillsPetition Starter
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The Decision Makers
Jeremy Hunt (Health)
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Petition created on 11 March 2016