Something mainstream media isn’t talking about is this:
We urgently need a national inquiry into endometriosis in Ireland.
For me, this isn’t theory - it’s lived reality.
It has been 10 years since I was injected against my consent with a treatment used for endometriosis in Ireland - a drug I had already been given twice before I was 30, without informed consent.
10 years ago today, I also had to come off the Food Academy.
I was at a point where we were preparing to bring products into retail - years of work building toward that moment.
But everything stopped.
I was starting “treatment” -
yet I was refused a detailed consultation
and not referred to a specialist,
even though I questioned my health and had already been living with an endometriosis diagnosis for a full decade at that point.
So while I should have been scaling a business -
I was instead navigating a system that wasn’t listening.
I was diagnosed in 2005.
It took until 2026 to access a specialist -through the ESAIS (Endometriosis Surgery Abroad Interim Scheme).
21 years.
In that time:
- I underwent 15 surgeries
- I lost 6 organs - not just my fertility, but my hormone production
- I endured decades of medical gaslighting
- I lost plans, stability, and time I will never get back
- I had to scale back my business and put my work on hold
At one point, we were preparing to move to Australia for a better life - to access care and a future that felt possible.
But I never got there.
Because of my health, I no longer qualified for another Irish mortgage.
I fell between the cracks - placed on a housing list that took 7 years - while trying to survive on:
- high private rents
- private healthcare costs
and a body that was already struggling
All while being told:
“Your scans are clear - it must be stress.”
It took another 10 years for:
a national endometriosis framework to be published
and for me to finally receive funding for multidisciplinary care
But let’s be clear:
👉 I lost my relationship
👉 I lost friendships
👉 I lost financial independence
👉 I am now healing through major trauma
👉 Adapting to a life that is often isolated
👉 Surviving on a low income
This is the cost of delay.
This is the cost of not being listened to.
Yes - we now have a published framework.
But let’s be honest:
👉 We do not have fully resourced specialist centres
👉 We do not have accountability
👉 We do not have justice for patients harmed along the way
And that matters.
This is where we are now:
We are no longer asking politely.
We are calling for:
- A National Endometriosis Inquiry
- Accountability for delayed diagnosis and harmful treatment practices
- Investment in fully resourced specialist care
- Recognition of the lived experiences of patients
📢 Raise the roof
If you’ve ever:
- Been dismissed
- Been told “it’s just stress”
- Been left waiting years for care
- Been harmed by a system that should have protected you
This is your moment too.
✍️ Take action now
Sign the petition.
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Start the conversation.