

CURED THALASSEMIA MAJOR CHILD MUST BE GIVEN HEALTH INSURANCE AFTER STEM CELL TRANSPLANT.


CURED THALASSEMIA MAJOR CHILD MUST BE GIVEN HEALTH INSURANCE AFTER STEM CELL TRANSPLANT.
The Issue
I am a Health policy holder of New India Assurance Co. Ltd since last almost ten years. We are four family members (1) Kruti Joshi (Self) (2) Mukesh Joshi (Husband) (3) Pratyush Joshi (Son) (4) Rudra Joshi (Daughter) out of which me, my husband and my daughter are covered. But my son has not been covered as he was diagnosed with Thalassemia major three months after his birth i.e. Jan/Feb-2010. Meanwhile we had tried to get health cover for my son by excluding “Thalassemia major” treatment. But regret says that all have orally denied by saying that such cases cannot be covered. And therefore up to the end of 2015 I cannot take health insurance for my son due to Thalassemia Major. In general it is in practice that at the time of taking health covers if any diseases exist with IP then it will be excluded from health insurance and he/she remains eligible to claim for others diseases. But in our case we have been out right denied to give health cover to my son due Thalassemia.
Meanwhile, my family has decided to treat my son with a stem cell transplant procedure at the age around five year. Accordingly in the month of June & July -2015 he was treated with stem cell transplant procedure in Apollo Hospitals, Village: Bhat, Ahmedabad by Dr.Chirag Shah and his team who is most reputed and well known among the world’s best eleven Doctors in blood related diseases. Today five years have passed and the procedure of stem cell transplantation is done, my son is absolutely cured and therefore in the Apollo Hospitals this case is known as a 110% success case. Not only that world ranked Dr. Chirag Shah felt proud that this is the case in which patients never have been transfused the blood from the date of stem cell was transplanted i.e. 16/06/2015 to till this date (i.e more than five years passed over). And therefore Dr. Chirag Shah himself has given a written certificate to my son Pratyush Joshi that he is totally free from Thalassemia Major.
This history is itself proving that my son is totally free from Thalassemia and therefore again this year I have requested your company through our agent for health insurance shall be given to my son but they have verbally denied.
Now, I must say that your company has no reason to deny health insurance to my son Pratyush Joshi because evidently it is proved that my son is totally free from diseases and hence he is eligible to take his health insurance. However, if your company does not agree to give Health insurance then you will have to give us your denial in writing quoting specific authority under which your company is refusing to give health insurance to my son Pratyush Joshi. And it will help us to represent our case before further appropriate authorities. Simultaneously, I agree to accept health insurance for my son with exclusion of Thalassemia diseases.
I also bring to your notice that there is no question of only my son but I am representing this issue on behalf of hundreds of Thalassemia sufferers. We are a large group of parents and relatives and Social activists of Thalassemia sufferer children working with NGO / Blood banks / Hospitals with our ultimate aim to make our children free from Thalassemia diseases. And for this purpose any point of time we put our utmost efforts for any need of a Thalassemia sufferer child. So we humbly invite you to look into the matter carefully and sign the petition for thousands of cured Thalassemia sufferers.
Please sign my petition and raise your voice for Thalassemic Children.
The Issue
I am a Health policy holder of New India Assurance Co. Ltd since last almost ten years. We are four family members (1) Kruti Joshi (Self) (2) Mukesh Joshi (Husband) (3) Pratyush Joshi (Son) (4) Rudra Joshi (Daughter) out of which me, my husband and my daughter are covered. But my son has not been covered as he was diagnosed with Thalassemia major three months after his birth i.e. Jan/Feb-2010. Meanwhile we had tried to get health cover for my son by excluding “Thalassemia major” treatment. But regret says that all have orally denied by saying that such cases cannot be covered. And therefore up to the end of 2015 I cannot take health insurance for my son due to Thalassemia Major. In general it is in practice that at the time of taking health covers if any diseases exist with IP then it will be excluded from health insurance and he/she remains eligible to claim for others diseases. But in our case we have been out right denied to give health cover to my son due Thalassemia.
Meanwhile, my family has decided to treat my son with a stem cell transplant procedure at the age around five year. Accordingly in the month of June & July -2015 he was treated with stem cell transplant procedure in Apollo Hospitals, Village: Bhat, Ahmedabad by Dr.Chirag Shah and his team who is most reputed and well known among the world’s best eleven Doctors in blood related diseases. Today five years have passed and the procedure of stem cell transplantation is done, my son is absolutely cured and therefore in the Apollo Hospitals this case is known as a 110% success case. Not only that world ranked Dr. Chirag Shah felt proud that this is the case in which patients never have been transfused the blood from the date of stem cell was transplanted i.e. 16/06/2015 to till this date (i.e more than five years passed over). And therefore Dr. Chirag Shah himself has given a written certificate to my son Pratyush Joshi that he is totally free from Thalassemia Major.
This history is itself proving that my son is totally free from Thalassemia and therefore again this year I have requested your company through our agent for health insurance shall be given to my son but they have verbally denied.
Now, I must say that your company has no reason to deny health insurance to my son Pratyush Joshi because evidently it is proved that my son is totally free from diseases and hence he is eligible to take his health insurance. However, if your company does not agree to give Health insurance then you will have to give us your denial in writing quoting specific authority under which your company is refusing to give health insurance to my son Pratyush Joshi. And it will help us to represent our case before further appropriate authorities. Simultaneously, I agree to accept health insurance for my son with exclusion of Thalassemia diseases.
I also bring to your notice that there is no question of only my son but I am representing this issue on behalf of hundreds of Thalassemia sufferers. We are a large group of parents and relatives and Social activists of Thalassemia sufferer children working with NGO / Blood banks / Hospitals with our ultimate aim to make our children free from Thalassemia diseases. And for this purpose any point of time we put our utmost efforts for any need of a Thalassemia sufferer child. So we humbly invite you to look into the matter carefully and sign the petition for thousands of cured Thalassemia sufferers.
Please sign my petition and raise your voice for Thalassemic Children.
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Petition created on 18 August 2020