My daughter has severe Myalgic Encephalitis / Chronic Fatigue Syndrome (ME/CFS) and is bedridden in a darkened room. Our family is fortunate to have a supportive General Practitioner, but there is currently no biomarker to diagnose ME/CFS easily, nor is there an effective treatment available. I have had to stop working to provide full-time care for her, clinging to the hope of recovery—a process that can take years. She has been unwell for over a year now, bedridden since November 2025. Despite our best efforts, two admissions to NHS hospitals have provided little support.

There are over 400,000 people in the UK suffering from ME/CFS. Unfortunately, while research is beginning to receive some government backing, the NHS continues to lack a comprehensive care package, especially for those severely affected. The care support for mild to moderate ME/CFS is limited and fragmented, leaving many without crucial help.

Immediate action is required to change this tragic reality. I urge the government to invest extensively in ME/CFS research to urgently find a reliable biomarker for straightforward diagnosis and treatment. Alongside this, it's crucial to mandate care packages for all levels of ME/CFS patients, with a special emphasis on those severely affected. It's equally important to implement training for all NHS staff to ensure they are equipped to handle this debilitating condition.

Your signature can help shine a light on ME/CFS and bring about the critical changes needed. This is not just a call for hope, but for urgent action. Please sign this petition to support the thousands suffering and help families like mine provide better care for their loved ones.