My son was diagnosed at the tender age of 19 with Ewing's sarcoma in 2021, a rare and aggressive bone cancer that left him paralysed from the waist down as there was a tumour wrapped around his spinal cord. Part of the tumour was removed by surgery but because of where it was some had to be left . 
he started to get feelings back in his legs once the pressure had gone . 4 weeks later he started chemo just before his 20th birthday. He had to learn to walk again with help from having many physiotherapist appointments. 
After treatment he started walking unaided , growing his hair back and going back to the gym. He was getting stronger and getting his life back. Everything was going in the right direction and I was the proudest mum on earth and I still am that proud mum. 
 
This devastating disease has changed our lives forever, highlighting the urgent need for increased awareness and research funding.  Nine months of chemotherapy and radiotherapy , endless infections and transfusions was something he shouldn’t have had to go through. 
After just 8 weeks of finishing treatment it had returned on his lungs (malignant pleural effusion ) . Three weeks later he passed. September 2022, the worst day of my life �. 
We have no idea why this happened , no one can give us any answers. 

Ewing's sarcoma is a rare disease that primarily affects children and young adults, accounting for only about 1% of all childhood cancers (American Cancer Society). Despite its rarity, it is aggressive and often results in severe disability or death. The five-year survival rate for localized Ewing’s sarcoma is approximately 70%, but this drops to around 15-30% if the cancer has spread (National Cancer Institute).

We are calling on health organizations, governments, and individuals to increase their efforts in raising awareness about this devastating disease. We also urge more funding towards research into better treatments and hopefully one day a cure.

Please sign this petition to show your support for those affected by Ewing's Sarcoma - let us make sure no other family has to go through what we have endured.