Mithra a soon-to-be 2 year old baby is suffering from a rare genetic disorder Spinal Muscular Atrophy.

A one-time gene replacement therapy is the cure for Spinal Muscular Atrophy.
1. The medication isn't available in India.
2. Our Government Hospitals doesn't have the facility to treat the same.
3. The medication Zolgensma is to be bought from a Switzerland based biopharmaceutical Novartis.
4. The medicine costs 2.125 Million USD which is 16 Crores in Indian Rupees, including the tax and import duties it sums up to 22 Crore Rupees

This medicine is important for the baby. If the treatment isn't done, her muscles will weaken and shrink. This makes it tough for the kid to even breathe or swallow. How does the miracle drug cure Spinal Muscular Atrophy? The people affected with Spinal Muscular Atrophy lose a specific type of nerve cell, a gene SMNI gene. This gene facilitates in effective functioning of the neuromuscular system. When Zolegensma is injected a copy of SMN1 gene is delivered which helps to encode SMN protein. The SMN protein activates the nerves to give signal to muscles to work properly. The efficiency rate is remarkable in the 1000+ babies who received Zolgensma.

We hereby request Honorable Prime Minister Narendra Modi and Central Finance Minister Smt. Nirmala Sitharaman to exempt tax and import duties for Baby Mithra's treatment.

We request everyone to sign up this campaign and show your support to Baby Mithra and request our Honorable Prime Minister to waive off Rs 6 crore tax on Zolgensma, imported Medicine.