Yesterday we had some amazing news! The Help Alfie Beat Neuroblastoma Team have only gone and the highly commended Best Team Volunteers award ! It was amazing how many of you nominated us we never actually imagined we would win so to find out we had was a wonderful surprise! It is truly humbling to know people put us forward for this. Alfie means so much to not just the team people all over the country and now also outside the UK. There was a press release on Friday 4th May 2018 regarding antibody treatment for Neuroblastoma ( dinutuximab beta) that is currently going through NICE to see if this can be given to children like Alfie on the NHS. The information NICE released so far is not looking good. They believe the drug is too expensive to give to children and not cost effective enough, although it is only 0.05% of the yearly budget. The antibody has been on trial for several years and is showing promising results. it is believed to give a child an extra 20% chance of survival. This may not seem a lot but when you think your child could possibly die from this disease this drug is a a life line. The drug is being used in the USA and other parts of Europe. New drugs for childhood cancer are few and far between. We need to move forward with this not back. This is devastating for families. It takes away hope in the fight against high risk Neuroblastoma. Is it not immoral to deny children the chance of essential treatment that could enable them to live longer or cancer free? It is now so important for us to raise this money for treatment,