Awareness and funding into cholinergic urticaria

The Issue

Hi, my name is Charlie, and I have suffered with Cholinergic Urticaria for 2 years. 

The condition is caused by an increase in body temperate, and causes painful, itching and burning hives on the person's body. Typically affecting face, chest and arms and typically starts at late puberty to early adultescents. 

It affects individuals in lots of their daily lifestyle, this could be exercise, bathing, most types of emotions (happiness, sadness and stress), eating spicy foods, and being in a warm environment (for example central heated buildings). In severe circumstances may result in anaphylaxic shock. 

In my darkest times, I was unable to do any physical exertion without it feeling like I was being burnt alive. I had to stop exercise or walking for more than a few mintues. I was unable to enter shops with central heating. I was unable to laugh, cry or be stressed  without the burning. 

Lots of suffers have lost relationships with friends, family, coworkers and partners to this condition. It has a massive affect on their school, unversity and worklife. Many of those, will be scared to stand up to accept their graduation certificate, ask a person on a date, tell someone you love them, cry at a death, or laugh to their favourite movie without the constant fear of a reaction happening. 

I am writing this petition to share awareness and seek funding into this condition to help those and loved ones of those who are suffering. The condition has not been widely researched and is still largely unknown what causes this and the mechanism of the reaction. Largely the standard treatment is unsuccessful for those with Cholinergic Urticaria. 

I hope to reach out to a large audience so I am able to show funders, this is a condition that people care about and that many people still suffer with this daily and provide hope to those that are suffering. 

Yours 

Charlie 

168

The Issue

Hi, my name is Charlie, and I have suffered with Cholinergic Urticaria for 2 years. 

The condition is caused by an increase in body temperate, and causes painful, itching and burning hives on the person's body. Typically affecting face, chest and arms and typically starts at late puberty to early adultescents. 

It affects individuals in lots of their daily lifestyle, this could be exercise, bathing, most types of emotions (happiness, sadness and stress), eating spicy foods, and being in a warm environment (for example central heated buildings). In severe circumstances may result in anaphylaxic shock. 

In my darkest times, I was unable to do any physical exertion without it feeling like I was being burnt alive. I had to stop exercise or walking for more than a few mintues. I was unable to enter shops with central heating. I was unable to laugh, cry or be stressed  without the burning. 

Lots of suffers have lost relationships with friends, family, coworkers and partners to this condition. It has a massive affect on their school, unversity and worklife. Many of those, will be scared to stand up to accept their graduation certificate, ask a person on a date, tell someone you love them, cry at a death, or laugh to their favourite movie without the constant fear of a reaction happening. 

I am writing this petition to share awareness and seek funding into this condition to help those and loved ones of those who are suffering. The condition has not been widely researched and is still largely unknown what causes this and the mechanism of the reaction. Largely the standard treatment is unsuccessful for those with Cholinergic Urticaria. 

I hope to reach out to a large audience so I am able to show funders, this is a condition that people care about and that many people still suffer with this daily and provide hope to those that are suffering. 

Yours 

Charlie 

The Decision Makers

Healthcare funding organisations (charities or private)
Healthcare funding organisations (charities or private)

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Petition created on 13 November 2020