I'm 15 and was born with a rare chronic blood disease. Kids just like me are suffering or dying.

It took years for my blood disease to be caught. I go to hospital every two weeks for treatment. Doctors say if it'd been any later I'd have been permanently disabled. That is terrifying - but a sad reality for too many families.

Australia’s newborn screening program lags behind the world. Kids are unnecessarily suffering or dying.

Diagnosis takes, on average, five years. By this time, many kids are permanently disabled, or dead. All from a totally treatable disease.

In Australia we screen for 2 times less conditions than in America. Our program is smaller than most countries.

Don't let another baby die from a disease that could’ve been treated all along.

Contact: Goodman.work@outlook.com

Twitter: https://twitter.com/GidonGoodman