Help get Cyclic Vomiting Syndrome recognized as a disability
Help get Cyclic Vomiting Syndrome recognized as a disability
The Issue
This petition asks that CVS gains the status of a disability. This would greatly benefit
- Paitents
- Awareness
- Research
- Treatment
- Carers
We need more awareness of this awful debilitating illness. CVS is a illness which affects the daily lives of sufferers and the people who care for them.
What is Cyclic Vomiting Syndrome
Cyclical Vomiting Syndrome is thought to affect 2% of the population. It comes in series of 'attacks', which may occur several times a month, each attack lasting up to 5 days. Many sufferers also get daily symptoms of nausea, mild vomiting and pain between attacks. This makes it very difficult for sufferers to lead a normal life.
Unfortunately, causes and cures are unknown. Many sufferers (usually young children, but adults as well) spend days in hospital each month. CVS isn’t recognised by the NHS as a disability, making it difficult for sufferers to be treated Other countries recognise CVS as a disability (e.g. Italy).
Symptoms
Vomiting is far from rare, as most people can testify. However, CVS is very different from the normal vomiting we are all familiar with in people who are ill, eat too much or suffer motion sickness. The most obvious thing is that the vomiting doesn't stop and the pain is unbearable. Some of the symptoms of CVS are...
- Severe and constant, unremmitting nausea
- Onset of vomiting is most commonly during the night or early morning
- Repeated vomiting, peaking at up to 5-6 times per hour maybe more
- Retching, often violently
- Pallor, often extreme paleness of the skin
- Headache/ Migraine
- Severe abdominal pain
- Low grade fever
- Diarrhoea
- Vomiting episodes may repeat with regular spacing of days or weeks
- Lethargy or unresponsiveness
- Dizziness
- Excessive salivation, and/or spitting
- Perplexing " or unusual behaviours
- Anxiety
For more information, please see the websites of the UK & US Cyclical Vomiting Syndrome Association (CVSA)
Or visit my CVS facebook group & page
The Issue
This petition asks that CVS gains the status of a disability. This would greatly benefit
- Paitents
- Awareness
- Research
- Treatment
- Carers
We need more awareness of this awful debilitating illness. CVS is a illness which affects the daily lives of sufferers and the people who care for them.
What is Cyclic Vomiting Syndrome
Cyclical Vomiting Syndrome is thought to affect 2% of the population. It comes in series of 'attacks', which may occur several times a month, each attack lasting up to 5 days. Many sufferers also get daily symptoms of nausea, mild vomiting and pain between attacks. This makes it very difficult for sufferers to lead a normal life.
Unfortunately, causes and cures are unknown. Many sufferers (usually young children, but adults as well) spend days in hospital each month. CVS isn’t recognised by the NHS as a disability, making it difficult for sufferers to be treated Other countries recognise CVS as a disability (e.g. Italy).
Symptoms
Vomiting is far from rare, as most people can testify. However, CVS is very different from the normal vomiting we are all familiar with in people who are ill, eat too much or suffer motion sickness. The most obvious thing is that the vomiting doesn't stop and the pain is unbearable. Some of the symptoms of CVS are...
- Severe and constant, unremmitting nausea
- Onset of vomiting is most commonly during the night or early morning
- Repeated vomiting, peaking at up to 5-6 times per hour maybe more
- Retching, often violently
- Pallor, often extreme paleness of the skin
- Headache/ Migraine
- Severe abdominal pain
- Low grade fever
- Diarrhoea
- Vomiting episodes may repeat with regular spacing of days or weeks
- Lethargy or unresponsiveness
- Dizziness
- Excessive salivation, and/or spitting
- Perplexing " or unusual behaviours
- Anxiety
For more information, please see the websites of the UK & US Cyclical Vomiting Syndrome Association (CVSA)
Or visit my CVS facebook group & page
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The Decision Makers
Petition created on 16 October 2013