Lets Get The MP's Onboard! Lets Get Our Voices Heard!

I am pleased to announce that I now have the template letter that we need to send out to all of our Local MP's to try and get as much backing as possible for this campaign. Sasha has been resting and spending her much quality time with her family as advised by her consultants, ready for the next step on her journey and we all wish her the best of luck in her treatment and recovery. So this is the next step on our journey in the fight against the Government! We need as much support from MP's as we possibly can, so if I can ask you all to use the link provided below to find your local MP's and then copy and paste the letter at the bottom of this update and either email or post it off. https://www.writetothem.com/ As you can see in the letter Anthony Nolan will be delivering their petition on 22 March, we are also going to be joining them on that day and delivering our petition too, if both are delivered on the same day we feel that this will have a stronger impact on the Government and hopefully make them stand up and notice that we are not going to stand back and be quiet!! I promised you we would not give up, Sasha has opened my eyes and I have seen first hand how this decision can destroy all faith in a system that is meant to be there to help those in need, meant to be there to pick people up, not kick them down when they are at breaking point and stressed out to the max with being faced with an illness that they have no control over! I have cried as I have watched what they have done to my friend when she has been at her lowest and most vulnerable times, but to them we are all just a number! There is no compassion, no comforting words and no thought for the fellow human being! They will carry on destroying people's lives if they do not rethink this decision and we will make it our mission, our passion to do everything in our power to not let others be treated this way. Sasha allowed me to tell her personal story in order to help others, we have helped her achieve her goal and her treatment will be done, but others are not going to be so lucky, why should anyone have to fundraise to save their lives? This should not have been taken away from them and we are going to make sure, if we can make a change then we will!! It all boils down to people power again, we know we can do it, we have done it once for Sasha, now let's do it again for all the others out there who may have to face this awful situation in the future or who may even be facing it now! Please more than anything spare five minutes to edit the letter and email or post it off to your MP. Please leave a comment on this update once you have sent the letter so that we can get some sort of idea as to how many MP's have been contacted. Together we shall fight! Together we shall conquer! Together we can all make a change! ------------------------- Dear .................... I am contacting you as one of the 167,000 supporters of Sasha Williams who has been denied a second stem cell transplant by the NHS due to a change in policy. https://www.change.org/p/give-sasha-a-chance-don-t-stop-funding-second-stem-cell-transplants I am writing to make you aware of the NHS England announcement in July 2016 that it would no longer routinely fund second stem cell transplants for blood cancer patients who have relapsed. The decision means that anyone with blood cancer or a blood disorder who has had one donor transplant already and subsequently relapsed will be denied the treatment that could offer them their best chance of survival. Without a second stem cell transplant, many of these patients will die. With another transplant, there is hope; evidence suggests there is a one in three chance that they will achieve the milestone of five year survival. I believe that if a patient is willing to undergo the procedure, if their doctor believes a transplant is their best option, and if a donor is willing to provide their stem cells, it is devastating that NHS England will deny them a second chance of life. In response to this decision, blood cancer charity Anthony Nolan are going to deliver an open letter to the Health Secretary signed by thousands of supporters urging him to intervene. I am writing to you as my MP to ask you to do two things: 1) Please could you save the date for Wednesday 22 March when Anthony Nolan and supporters will be delivering their petition along with Amy Collins who will be delivering Sasha’s petition that was recently mentioned in Parliament. Anthony Nolan will also be holding a drop-in event in Parliament for MPs where you will be able to hear from people affected by NHS England’s decision and take part in a photocall. It would be great if you can attend, and Anthony Nolan will be sending further details nearer the time. 2) NHS England will be conducting their next round of policy prioritisation in May. In advance of that I would be grateful if you could meet with or write to representatives of NHS England (specifically the Director of Specialised Commissioning), to ensure that no one else has to go through what Sasha has. Should you not have it the address for the Director of Specialised Commissioning is Dr Jonathan Fielden Director of Specialised Commissioning NHS England Skipton House 80 London Road London SE1 6LH. I look forward to hearing from you. Yours sincerely,