- Hon. Sussan LeyMember of Parliament, Minister for Health
- Prime Minister of Australia Hon Malcolm TurnbullParliment House Canberra ACT 2600
Keytruda on PBS (Pharmaceutical Benefits Scheme) for Mesothelioma and other rare less common cancers (RLC). Keytruda life saving drug!
Lou Williams Win News TV interview on life saving drug Keytruda.
We are campaigning to have Keytruda fast tracked on the PBS for Mesothelioma (Asbestos cancer) and other rare less common cancers (RLC) as it has shown great promise in treating these cancers and need your help to do so. I, Lou Williams, believe those living with Mesothelioma and other RLC should have the option of this drug Keytruda (in discussion with their oncologist) and not have the worry of finding the expensive funds to have the infusion every three weeks. It has shown to kickstart the immune system and in turn fight the cancer cells. It has done this with me - I have peritoneal and pleural mesothelioma and was literally on death's door! Keytruda gave me excellent quality of life for 12 months. I now am able to have a new chemotherapy regime to target tumour activity inside my lungs because my immune system is very strong thanks to having Keytruda for 12 months. I have no pain, do not need any oxygen and have excellent quality of life thanks to Keytruda. If I need further Keytruda I will be able to access it at a later date.
Daily I am contacted by others with Mesothelioma wanting to have Keytruda and because of the expense cannot do so. Mesothelioma cancer is brutal, aggressive and very painful, we simply do not have the time to put our life on hold until the Keytruda issue is 'debated'. Please sign and continue to share this petition. Thank you.
Currently Keytruda is on PBS for Melanoma cancer only as of Sept 2015). Melanoma patients now pay $6 for infusions of Keytruda while patients who are having Keytruda as a life saving drug pay $5,000 to $10,000 per infusion of Keytruda!
Lou Williams - Peritoneal and Pleural Mesothelioma since 2003.
Social Media Voice ADFA (Asbestos Diseases Foundation Australia)
Australian Director, GBAN (Globan Ban Asbestos Network)
http://www.adelaidenow.com.au/lifestyle/health/tanya-dusen-on-being-diagnosed-with-mesothelioma/story-fni0diad-1227515090599 (Read Tanya's story by clicking the above link. Tanya is currently having Keytruda). I am Tanya, a 42-year-old mother of two from Bathurst, New South Wales. I was diagnosed with mesothelioma in October 2012, also known as the “asbestos cancer”.
I want to ensure I am here for them now and well into the future. I know with the right treatment there is hope. Hope that I may be able to continue to breathe and take in each day and all life has to offer. Unfortunately, this treatment is not accessible to the average person, because the system here in Australia continues to discriminate. With no government funding for my treatment, I must rely on the charity of others.
(Unfortunately Tanya passed away 23 September 2015, she campaigned for funds to have Keytruda and unfortunately became too ill to be given Keytruda at such a late stage in her illness).
- Prime Minister of Australia
- Member of Parliament, Minister for Health
Hon. Sussan Ley
- Parliment House Canberra ACT 2600
Prime Minister of Australia Hon Malcolm Turnbull
Ref: Keytruda on PBS for Mesothelioma and other rare less common cancers (RLC) - life saving drug!
I understand that Keytruda has recently been listed on the Pharmaceutical Benefits Scheme (PBS) for the treatment of Melanoma. There have been a number of cases recently in Australia where patients battling Mesothelioma have been greatly assisted by an off-label prescription of Keytruda. A number of these patients have subsequently seen a significant improvement in their health and the remission of many of the symptoms of their condition. As with most biologic treatments, off-label prescriptions for Keytruda are prohibitively expensive for individuals and many patients with Mesothelioma are faced with bills of several thousand dollars each month should they wish to pursue this treatment option. Can you please advise what steps the Government is taking to include Mesothelioma as an indication for Keytruda on the PBS?
What options are available to assist patients who are currently paying to receive off-label treatment with Keytruda? I look forward to a response at your earliest convenience.
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