Ensure a secure future for children affected by Sodium Valproate

The Issue

My children, like many others, were diagnosed with fetal valproate spectrum disorder after I was heavily overprescribed sodium valproate, an antiepileptic drug often prescribed for epilepsy and bipolar disorder but with the potential for significant harm to unborn children. The devastating consequence of this over-prescription is a lifetime of challenging neurological disorders, developmental delays and physical health challenges. 

This petition is a plea to improve the future of children affected by fetal valproate spectrum disorder. We understand medical intervention cannot cure everything, but more can be done to diagnose and provide access to specialist health care more promptly and effectively.

Evidence from UKTIS states that children of mothers who took only 800ml of valproate during pregnancy will have a 37%  likelihood of a disorder on the fetal valproate spectrum.  The effects on the baby are dose-dependent.  Therefore, the impact on the family unit has been devastating. Mothers were given up to 5000mg of sodium valproate. We demand that all children are given equitable access to professionals knowledgeable and experienced in dealing with this disorder, ensuring these children are given the best chance at life
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Furthermore, guidance on academic accommodations and support during school years is critical, as children with a fetal valproate spectrum disorder commonly experience intellectual disabilities. Access to suitable and targeted education programs can substantially improve these children's learning trajectories and future prospects.

Finally, the implications of this disorder extend beyond the affected individual—the entire family unit often bears the brunt of the physical, emotional, and financial costs associated with it, which can be overwhelming. We must ensure support programs are in place to ease their journey and provide overall family wellness.

Amplify this call for change by signing this petition. Let's strive together to improve the future of children affected by fetal valproate spectrum disorder and ensure they receive the support they duly deserve. Let's not forget about their families, whose lives are also deeply entwined with this disorder. Your signature can make a difference.

1,366

The Issue

My children, like many others, were diagnosed with fetal valproate spectrum disorder after I was heavily overprescribed sodium valproate, an antiepileptic drug often prescribed for epilepsy and bipolar disorder but with the potential for significant harm to unborn children. The devastating consequence of this over-prescription is a lifetime of challenging neurological disorders, developmental delays and physical health challenges. 

This petition is a plea to improve the future of children affected by fetal valproate spectrum disorder. We understand medical intervention cannot cure everything, but more can be done to diagnose and provide access to specialist health care more promptly and effectively.

Evidence from UKTIS states that children of mothers who took only 800ml of valproate during pregnancy will have a 37%  likelihood of a disorder on the fetal valproate spectrum.  The effects on the baby are dose-dependent.  Therefore, the impact on the family unit has been devastating. Mothers were given up to 5000mg of sodium valproate. We demand that all children are given equitable access to professionals knowledgeable and experienced in dealing with this disorder, ensuring these children are given the best chance at life
.
Furthermore, guidance on academic accommodations and support during school years is critical, as children with a fetal valproate spectrum disorder commonly experience intellectual disabilities. Access to suitable and targeted education programs can substantially improve these children's learning trajectories and future prospects.

Finally, the implications of this disorder extend beyond the affected individual—the entire family unit often bears the brunt of the physical, emotional, and financial costs associated with it, which can be overwhelming. We must ensure support programs are in place to ease their journey and provide overall family wellness.

Amplify this call for change by signing this petition. Let's strive together to improve the future of children affected by fetal valproate spectrum disorder and ensure they receive the support they duly deserve. Let's not forget about their families, whose lives are also deeply entwined with this disorder. Your signature can make a difference.

The Decision Makers

united kingdom national health service
united kingdom national health service
UK Teratology Information Service
UK Teratology Information Service

Petition Updates