fundamental research for spinocerebellar ataxia type 1

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The Issue

My father has struggled with Spinocerebellar Ataxia Type 1 his whole life, it has caused many issues and stopped him from being able to accomplish the things he wants. His mother passed in November 2020 at the age of 61 due to this disease. There has been no extensive research on trying to find a treatment for this because there has been no beneficial funding. SCA type one is defined as "individuals with SCA1 may develop numbness, tingling, or pain in the arms and legs (sensory neuropathy); uncontrolled muscle tensing (dystonia); muscle wasting (atrophy); and muscle twitches (fasciculations). Rarely, rigidity, tremors, and involuntary jerking movements (chorea) have been reported in people who have been affected for many years." People have low life expectances and it causes them to have the inability to do things as simple as talking normally for people understand and is part of the reason my father can't even find a job. There hasn't been any one "important" or famous that has it so who cares right? wrong. There is so much more that needs to be done for this issue.

The Decision Makers

NATIONAL ATAXIA FOUNDATION
NATIONAL ATAXIA FOUNDATION
Spinocerebellar ataxia type 1

Petition Updates