Guess what...? Your signature worked! The Aicardi Goutieres Syndrome Advocacy Association (AGSAA) has a November meeting with the right people at Eli Lilly to learn about each other's goals and how we might be able to partner going forward. This is just the beginning, and we want to get these efforts started with our community's needs and difficulties in focus. We've prepared four different ways for you to participate:

1. Write a testimonial Letter (we provide a template).
2. Take a short online survey (and upload some pictures/videos).
3. Volunteer to be interviewed for a segment in our new podcast, The Rare Advocates.
4. Complete a short Patient Registry survey to quantify issues like delays, cost, and lack of availability.

If you're an AGS family or want to provide a testimonial based on your observation of one, head over to our website for instructions!

https://agsaa.org/jaki-testimonials