Eli Lilly, Advance Mission to Support Debilitating Brain Disease With Proven Medication
Eli Lilly, Advance Mission to Support Debilitating Brain Disease With Proven Medication
Why this petition matters
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Eli Lilly & Co, treatment with your JAK inhibitor baricitinib has proven to be a life saving and altering treatment for children and adults living with the debilitating neuroinflammatory brain disease Aicardi-Goutieres Syndrome (AGS). For reasons unknown, our community has waited without update for you to continue advocating for approval with the FDA. In the interim, AGS families around the world have struggled with cost and access issues despite compelling testimonials, published evidence of safety and efficacy, and the support and advocacy of the American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR).
Engage in dialogue and partner with the community and patient advocacy group, the AGSAA.
Provide cost assistance to AGS families.
Advocate for approval with the FDA.
Decision Makers
Janet Woodcock, M.D.FDA Director, Center for Drug Evaluation & Research
Patrik JonssonLilly senior vice president, president of Lilly Immunology and Lilly USA, and chief- Robert M. CaliffFDA Commissioner
- Patrizia CavazzoniFDA Director of the Center for Drug Evaluation and Research
- Daniel SkovronskyPresident of Lilly Research Labs and Senior Vice President of Science and Technology
