September is Leukodystrophy Awareness month, and the patient advocacy association for Aicardi-Goutieres Syndrome (the AGSAA) has been putting a lot of effort into sharing our diverse stories. With the help of AGS families, we've already highlighted 9 families in 6 different countries; and we have many more to go! By the end of the month, we'll have introduced a family from every (inhabitable) continent. Despite our differences, you'll find that all families share a common drive: to provide the best opportunity for our kids.

We ask you to follow along and help us spread awareness this month by sharing posts, stories, and tweets on Instagram, Facebook, and Twitter. Our struggle to gain Lilly's attention and support has only just begun.