Victory
Petitioning Minister of Health and Family Welfare Dr. Harsh Vardhan

@drharshvardhan : Save my 12 year son Arian #savearian #huntersyndrome


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Supporters

My 12 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are affected by this disorder. We witness him struggling with his life everyday, battling this disorder.

This is one of the rarest disorders in the world. Most countries have subsidized treatment for this disease, but this is not the case in India.

Most patients die young because the treatment is very expensive. I don't want to lose my son, that’s why I need your support

The Indian Minister of Health and Family Welfare, Dr.Harsh Vardhan, has the power to change this and subsidise treatment for this rare disease.  

In order to live, Arian needs to undergo an enzyme replacement therapy developed by Shire, a US drug company. But the medicine is very expensive and impossible to find in India. If this treatment is subsidised in our country, anyone suffering from this disease will be able to afford it. 

That’s why I started a petition on Change.org, asking Minister Dr. Harsh Vardhan to subsidise the treatment for Hunter Syndrome patients in India, and save Arian’s life.

Over the years my son’s health has deteriorated drastically. We need as much support as we can get on our petition to ensure that Dr. Harsh Vardhan doesn’t ignore our demand.

Please sign my petition and share it with your friends. 

Thanks in advance for your support

Sib Sankar Chowdhury 

Letter to
Minister of Health and Family Welfare Dr. Harsh Vardhan
RE: Medical support for Arian and subsidise medicine for Hunter Syndrome patients

Dear Sir,

As an Indian citizen I request you save this 12 year old boys life and subsidise medicine for Hunter Syndrome Patients.

Here's a message from his father:

My 12 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are affected by this disorder. We witness him struggling with his life everyday, battling this disorder.

This is one of the rarest disorders in the world. Most countries have subsidized treatment for this disease, but this is not the case in India.

Most patients die young because the treatment is very expensive. I don't want to lose my son, that’s why I need your support.

The Indian Minister of Health and Family Welfare, Mr. Ghulam Nabi Azaad, has the power to change this and subsidise treatment for this rare disease.

That’s why I started a petition on Change.org, asking Minister Ghulam Nabi Azaad to subsidise the treatment for Hunter Syndrome patients in India, and save Arian’s life.

In order to live, Arian needs to undergo an enzyme therapy developed by Shire, a US drug company. But the medicine is very expensive and impossible to find in India. If this treatment is subsidised in our country, anyone suffering from this disease will be able to afford it.

Over the years my son’s health has deteriorated drastically. We need as much support as we can get on our petition to ensure that Shri Azad doesn’t ignore our demand.

Thanks in advance for your support

Sib Sankar Chowdhury

On a planet with 7 billion people, amore than 2000 people afflicted with Hunter Syndrome.

The family needs your support, please give them medical support for their son Arian and subsidise medicine for hunter syndrome patients in India.

Looking forward to your early action,