PERIANAL ABSCESS & FISTULA DISEASE SHOULD BE CONSIDERED A DISABILITY IN THE UK

PERIANAL ABSCESS & FISTULA DISEASE SHOULD BE CONSIDERED A DISABILITY IN THE UK

The Issue

Perianal Abscess & Fistula Disease is a severely life limiting, ongoing and incredibly difficult to cure condition. It is not well known about as sufferers do not talk about it due to the embarrassing nature of it. As the name suggests it is an acutely painful abscess in the soft tissue around the anus. It is NOT the same as a tooth abscess. Once you get it once in most cases it reoccurs over and over due to damaged tissue or the formation of a fistula. The abscesses may cause sepsis and can be fatal.Treatment is by antibiotics and surgery but these are only a temporary fix and within weeks it reoccurs.Many people like myself will be on prescription laxatives for life, it can cause incontinence and some people have had multiple surgeries without success or cure. It can result in having a permanent drain or as a worst case scenario a proctocolectomy. The symptoms are acute pain, difficulty sitting or walking, high fevers, nausea and fatigue  but there are no visible symptoms yet here in the UK The Department of Communities do not recognise it as a disability entitling you to any of the benefits that go along with that. The companies Capita for PIP and MSS for ESA that assess have never even heard of the condition. It is time for change. We cannot let our embarrassment of our condition prevent us from having our disease properly listed and recognised

1,550

The Issue

Perianal Abscess & Fistula Disease is a severely life limiting, ongoing and incredibly difficult to cure condition. It is not well known about as sufferers do not talk about it due to the embarrassing nature of it. As the name suggests it is an acutely painful abscess in the soft tissue around the anus. It is NOT the same as a tooth abscess. Once you get it once in most cases it reoccurs over and over due to damaged tissue or the formation of a fistula. The abscesses may cause sepsis and can be fatal.Treatment is by antibiotics and surgery but these are only a temporary fix and within weeks it reoccurs.Many people like myself will be on prescription laxatives for life, it can cause incontinence and some people have had multiple surgeries without success or cure. It can result in having a permanent drain or as a worst case scenario a proctocolectomy. The symptoms are acute pain, difficulty sitting or walking, high fevers, nausea and fatigue  but there are no visible symptoms yet here in the UK The Department of Communities do not recognise it as a disability entitling you to any of the benefits that go along with that. The companies Capita for PIP and MSS for ESA that assess have never even heard of the condition. It is time for change. We cannot let our embarrassment of our condition prevent us from having our disease properly listed and recognised

The Decision Makers

Department for Communities NI
Department for Communities NI

Supporter Voices

Petition Updates