

Finally the petition has hit over a 1,000 signatures now, thanks to your help and supporting me in this fight!
The goal of this petition is to get enough signatures to make a change.
Sudep must be disclosed as a risk when diagnosed with epilepsy but it is very much hidden. In our Sudep awareness group on Facebook, there are still many grieving parents, sisters/brothers who hadn’t heard of Sudep in epilepsy from their doctors or neurologists. Now they are left feeling helpless with no warning of Sudep.
This is a massive failing on the part of doctors and most definitely a dereliction of duty of care.
Our risks our rights!
We have to come to an agreement that it has to be mandatory and must be disclosed when diagnosed with epilepsy, especially when seizures are not under control of medication.
please get your friends or family members to sign, work colleagues?
It could have possibly saved my son if we had been warned.
Thank you again everyone for your continued help. 🙏