Hi everyone. Last week parliament held talks on epilepsy and achievement of what people can do living with epilepsy.

Im angry because once again Sudep in epilepsy was skipped over, not even mentioned. I think it’s disgusting the way this is being hid. I applaud anyone who makes great achievements in sport etc but the forgotten ones count too! Many grieving parents count! Our petition is slowly going up with all your help with signatures. 
This is going to be a hard battle please keep sharing our story as another 8 grieving parents joined  the Sudep support for bereavement group. Nobody knew of Sudep, never warned of the 1 in 1,000 risk.

We need to get through to people who think there’s only one kind of epilepsy.

Thank you all once again for signing this petition, to me you are all heroes.