Our petition is going slowly right now, maybe I’m scaring people, please believe this is not what I want to do. I want to raise awareness, I only wish I had been warned if this, my son may have still be here.

Our life choices would have been very different had we be warned of Sudep in epilepsy. My son would not have moved into a flat of his own which I hated as I had him with me till he was 30 years old. I believe in my heart he would still be here and that’s why I carry on with the petition. It won’t help us but it could help so many make a better lifestyle choice. I do not want others to go through this and for it to be unknown, as it was to me. I’ve found that they are not adding this to death certificates now.

Why is this being hidden? It’s our risks so surely our choice! We need to demand that this risk is taken seriously, there are too many grieving parents on the Sudep Group now, they were not warned either. 
I thank every single one of you for signing but we need to keep on demanding better health care from our doctors and neurologists. (Sudden Unexpected Death Syndrome)

90% of them do not disclose Sudep to their patients. Please help me push this through.

You do not have to donate just copy or share link. I’ve been advised some feel pressure to chip in, I’m personally happy with signatures only. Once again, thank you for trying to make a difference ❤️