Hi everyone, as the headline says this petition is going slowly but surely. 
I hate being the one who’s advising epilepsy patients about Sudep.
Neurologists are negligible in their duty to inform and that is not good enough!

If we were told, is it possible my son would still be here with me, maybe.

The Epilepsy Society say 80% deaths in epilepsy are avoidable. Had we been warned I’d say it’s possible I’d still have my son. 
Awareness is needed in schools, possibly from an early age how to protect someone having a seizure. 
A shortage in medication for epilepsy patients is not on!

To Chloe who left your video message .. hunni my heart goes out to you , it really is important to be aware and get a faster diagnosis. Nearly dying 13 times is horrifying. Your obviously an #epilepsywarrior Sending you my love❤️💜

Thanks to everyone who’s added to my petition, is there anyone else you could possibly share with others? 
I really am so grateful to you all. 
Let’s change the guidelines on telling patients about Sudep and save more lives.