I'm a living testimony of the struggle endured by many Australians suffering from Ehlers Danlos syndrome and its debilitating complications such as gastroparesis, gastroptosis SMAS, POTs, and organ prolapse, among others. Then to those I know who carriy some if not all of the comorbidities associated with these conditions, this struggle breaks my heart. We demand more understanding, more research, and more adequate support for us, the victims of this disregarded illness. 

Ehlers Danlos syndrome is an under-diagnosed, neglected disease, affecting people in so many ways and causing severe illnesses. But significantly, it is regularly misunderstood by the medical profession, leading to accusations of factitious disorder, further damaging victims. Like many others, I've been gaslighted, medically neglected, and misunderstood due to this lack of awareness about the disease.

It’s not just medical education that needs improvement. Accessibility to necessary support systems like NDIS and Centrelink for Ehlers Danlos syndrome sufferers is equally crucial. Currently, individuals are fighting harder for these services than what they should, with politicians seemingly indifferent to their plights despite our endless complaints.

By signing this petition, you will be contributing to a call for change. Let's make Ehlers Danlos syndrome a priority, pushing for increased awareness, mandating medical education about the disease AND its comorbidities and revamping the process of accessing NDIS and Centrelink services. This has to change, and it starts with your help. Please sign this petition to raise awareness for Ehlers Danlos syndrome and demand a much-needed improvement in the care and treatment of its victims.