Please Read Before Signing:

We highly encourage you to share why you feel a comprehensive complex coordinated care program would help your child and family in a respectful manner, to like the facebook page, and to sign the petition. Anything negative or disrespectful towards CHOA physicians or employees will be removed from this page. We want to keep an open and respectful discussion with CHOA. 


We are thankful for CHOA and for everything they have done for our kids. This petition and the facebook page is not meant to bash CHOA. This effort is meant to show there is a substantial need and that as parents and families of medically complicated children, we are willing to help make this happen. While we do empathize and have been there and have our own negative experiences, we ask that you please keep complaints or negative comments off this petition.

Children’s Healthcare of Atlanta has provided wonderful, lifesaving services for thousands of medically fragile children across the metro Atlanta area for decades. We are nothing but grateful for all the hard work and dedication the employees of Children’s Healthcare of Atlanta have dedicated towards improving the quality of life of our children through advanced medical care. They have shown nothing but compassion and dignity towards medically complex children and their families while dealing with difficult and complicated decisions. Families of medically complicated children and truly grateful that Children’s Healthcare of Atlanta exists, for all three of their hospitals, and for that fact that they have such a wonderful resource in the state of Georgia. They are truly thankful that every day, Children’s Healthcare of Atlanta is striving to improve care for all of the children in the state of Georgia.

Care for medically complex children who are seen at Children’s healthcare of Atlanta needs to be centralized and improved. These children need a team of doctors at each of the three hospitals just for them. Our children need a comprehensive complex coordinated care team. The families of these medically complicated children are dedicated to helping make this happen! We are willing to help with fundraising and campaign efforts to make medical care better for our children and easier for their families. Taking the steps we are suggesting will also decrease the cost of care for our children, take the burden off specialty physicians, improve quality of care for patients, reduce Medicaid costs, and free up hospital bed space.

The Complex Comprehensive Coordinated Care Team also needs to have outpatient services. This clinic needs to have the ability to draw labs (especially from central lines). This team needs to work with the palliative care team and help our children and families when they are not in the hospital. Our children need a team that consists of healthcare professionals with broad experience caring for medically complex children. The team needs to includes pediatricians who direct medical work-up, collaborative consultation with specialists and admission to the hospital if needed. It should also include physician assistants and nurse practitioners, pediatric social workers, child psychiatrists, child life, physical and occupational therapists, family advisors and palliative care experts. Atlanta’s medical complex children need what other complex children across the country already have. We need our own team that works hard to ensure that all providers are able to collaborate effectively, facilitating communication among primary care physicians, specialists, therapists, schools and families, to provide the continuity of care children with complex medical conditions need.

In the words of a local parent of a medically complex child: "What I WISH for is someone to be the go-to person during every crisis, the one who would order labs, admit to hospital, and visit in hospital during every bad situation. Someone willing to speak with those specialists when things are really serious is vitally important to me. Someone truly caring yet very willing to tell me the plain, hard truth about my child's disease and the progression of it would be a huge blessing." This team will cut down on cuts, improve care for these kids, save bed space in already crowded intensive care units, and make healthcare more efficient. The families of these children are willing to help to make this happen. We are willing to be involved with fundraisers, research, and advertising campaigns. We are willing and eager to work with Children’s Healthcare of Atlanta to help this become a reality.