On the 9th of April 2020 Channel 7 Perth aired a report that publicly degraded the complexity of medical condition, Ehlers Danlos Syndrome, by describing it as being "simply loose joints". As a personal suffer, I can confidently tell you that EDS is a whole lot more that "loose joints".

EDS effects everyone differently. Everyone has their own story but here's mine. I have range of gastrointestinal issues, urological issues, gynecological issues, heart and immune system complications as well as suffering chronic pain, subluxations and syncope daily.

It took about 2 years to get the care and diagnosis’s I needed, as EDS is rare and extremely complex. My family and I fought to get my health to where it is today. For the last 3 years we have shed tears, spent countless hours in the hospital and at appointments and we definitely know EDS is not just “simply loose joints”. So you understand why I feel personally insulted by your throw away definition?

Channel 7 should not be using their platform to discredit affected individuals, families and especially the copious amount of doctors, nurses and allied health workers who work tirelessly to ensure we have an improved quality of life. 

Channel 7 Perth you have done us a disfavor. We struggle enough to get the appropriate medical care and attention we need - EDS is already complex and rare, and you just made it more complex. I hope you are happy.