There is a stigma around Type 1 Diabetes due to Diabetes being used as a general term that umbrellas Type 1 and Type 2. Most of the community do not understand there is a difference between the two types. Changing the name will help people understand that they are two completely different conditions

Letter to
Minister for Health Victoria Hon. David Davis
President of the International Diabetes Federation Sir Michael Hirst
President & CEO of JDRF Jeffrey Brewer
and 1 other
Minister for Health Hon Tanya Plibersek (Minister for Health)
As a mother of a 4 year old Type 1 Diabetic I know first-hand how hard it is to cope day to day with the ups and downs of Type 1 Diabetes. We live every minute of the day with the constant reminder that no matter how many times we test, count carbohydrates, rejig insulin doses and so on there is still the risk of hypoglycemic and hyperglycemic events happening in the blink of an eye for no reason at all.

We all try as hard as we can to help our Type 1 Children live the life of a 'normal' child. While we are going along with our lives and treating Diabetes out in the open, as you have to when you have Type 1 Diabetes, you pull out the test kit and someone stops and asks 'Has he got Diabetes?'. 'Yes, he does, Type 1 Diabetes' I always say to them but still the comments start... 'My Grandmother has Diabetes, she just takes tablets', 'Did you feed him too much sugar?', 'I know a person that was put on a diet and was cured of Diabetes', 'He'll grow out of it' and the list of comments goes on and on. Every day we put up with the snarls and comments from the general public due to the name Diabetes. The general public associate the word Diabetes with Type 2 and, due to a lack of education and awareness, do not realise that Type 1 & Type 2 Diabetes are two completely different diseases.



Type 1 is FOR LIFE

Type 1 Diabetics rely on INSULIN TO LIVE

Type 1 Diabetics need to TEST BLOOD GLUCOSE & COUNT CARBOHYDRATES every time they eat

Type 1 Diabetics CAN EAT ANYTHING including sugar and as a matter of fact SUGAR actually SAVES THEIR LIVES

Type 1 is NOT treatable with TABLETS OR DIET

Please, help us change the name! Let's remove the stigma of Type 1 just because it has Diabetes in its name.

One suggestion that has stuck with me, thanks Ian de Wal, is P.A.I.D (Pancreatic Auto Immune Disease) that's what it is, isn't it??!!

Thanks for reading and a special Thanks for signing


Amanda Lenehan

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