#NotJustAVisitor A Canadian Declaration of Family Caregiver Rights and Responsibilities

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#NotJustAVisitor

A Canadian Declaration of Family Caregiver Rights and Responsibilities:

Family caregivers of any age - whether blood relations or friends of any age - are more than just visitors. We provide care and support to someone living with disease, disability or frailty due to aging. We are often the care recipient’s closest, holistic, and involved care partner. We deserve to be regarded as critical members of the health care team ministering to our loved ones. As such, we maintain that we have the right to:

  1. Advocate for our family members to ensure they receive the best care possible.
  2. Access, be with, support, care for, comfort, and touch and hold our family members in whatever care settings they may find themselves.
  3. Timely and accurate information on our family member’s condition and circumstances.
  4. Ensure our family member receives any religious support or ritual, based on their religious and cultural beliefs.
  5. Be involved in a supportive role to help our family member decide on the care that is right for them.
  6. Access support and time off from caring to uphold our physical and mental health.
  7. Combine caring with paid employment.
  8. We recognize that we have the responsibility to minimize the risk of transmission of infectious diseases to others.
  9. Technology, equipment, and training required for us to exercise our rights that should be provided by health care providers, institutions, or governments.
  10. Hold health and social care system leaders accountable for their adherence to our rights and their support of our responsibilities.

We call upon responsible citizens, officers of government, and health and social care system decision-makers and providers everywhere to adopt and promote those rights and responsibilities designed to realize, maintain, and strengthen the role of family caregivers as an essential component of a caring and compassionate society.

Specifically:

If you are a family caregiver or concerned citizen 

  1. Please sign the petition;
  2. Contact your elected representatives;
  3. Share your individual story on social media.

If you are a Health care Provider or Organization

  1. Sign your organization on to support the Declaration;
  2. Create a family caregiver policy;
  3. Involve family caregivers in decision making.

If you are a Decision Maker or Elected Official

  1. Adopt the Declaration in your programs and organizations;
  2. Involve family caregivers in decision making.

Learn more, visit our website: www.caregivers4change.com