Hello all! My name is Kelsea B. I am the mother and sole caregiver to my 9 year old son Jourdan!! Jourdan is severely disabled and requires 100% complete care with hospital like settings at home; nonverbal. Jourdan had a grade 4 hydrocephalus at birth when he was just 24 weeks gestational. Jourdan spent 9 long months in the NICU after birth. 95% of his brain is gray matter. He has several fluid pockets permanently. He has a VP Shunt to help regulate his Ceberal Spinal Fluid. His cognitive was damaged so bad he can't hardly swallow. Which led to a trach placement and feeding tube at 6 months old. At home Jourdan has a pulse oximeter, suction machine, and oxygen supplements. Jourdan suffers with seizures, hypodysplasia chronic lung disease and several other diagnoses. The state i reside in does not recognize caregiver rights where ,I the parent of Jourdan, can be compensated to stay home and care for my son around the clock. The only coverage SSI Medicade provides is in home nursing. So the state will pay a nurse 8 hours a day, 7 days a week, $23 an hour to come into my home and care for Jourdan so I can go out and work a job that provides less than what the nurse makes coming to my home. Please sign this petition in a hope that my state will recognize caregiver rights to parents like me that need to provide for children like Jourdan. Our sister state recognizes the caregiver program but our state does not. This is an attempt to avoid packing up my family and moving out of state just so I can obtain benefits that he is eligible for. There are other people in our state who also deserve this benefit!! Please help me make the change. Not only for my family but many others who are failed and struggling to fight for their children who can't advocate for themselves!!