Call on the UK government to create NHS care pathway for PMOS (formerly PCOS)

Call on the UK government to create NHS care pathway for PMOS (formerly PCOS)

Recent signers:
Joseph Arnold and 19 others have signed recently.

The Issue

For over 20 years, I have navigated a healthcare system that has consistently failed to address my needs, leaving me to fight a solitary battle against Polyendocrine Metabolic Ovarian Syndrome (PMOS) formerly known as Polycystic Ovarian Syndrome (PCOS). Despite being one of the approximately 1 in 8 women who struggle daily with this condition, I have been met with blame, neglect, and advice that, more often than not, contradicts the standards set by NICE guidelines. This marginalization is exacerbated by outdated practices that tie the quality of care to postcode lotteries and an overwhelmed health system that offers no viable options.

PMOS, a debilitating condition that affects countless women across the UK, remains poorly understood, woefully underfunded, and inadequately addressed within our National Health Service. The lack of a comprehensive, centralized care pathway for PMOS not only leads to unnecessary suffering but also perpetuates a cycle of inadequate treatment, misdiagnosis, and mental distress. Currently, the demand far outstrips the available resources, meaning many women are left without proper diagnosis, care, or support—an unacceptable status quo for a nation that prides itself on its healthcare.

Our call to action is clear: we urgently need the UK government to establish a new care pathway within the NHS specifically for PMOS. This initiative must encompass robust mechanisms for early and accurate diagnosis, improved access to necessary care and support, and, crucially, dedicated funding for research into effective treatments and screening procedures.

By prioritising this pathway, we can alleviate the undue burden placed on individuals and families, and empower healthcare professionals with better tools and protocols to manage this condition effectively. Investment in research will not only lead to breakthroughs in treatment options but also facilitate early identification and intervention, drastically improving quality of life for those affected.

We cannot allow the outdated system of postcode lotteries to dictate the standard of care. Every woman, regardless of her geographic location, deserves access to high-quality, evidence-based healthcare. Our health system must evolve to address these disparities and ensure that every woman is heard, acknowledged, and treated with the dignity and respect she deserves.

Join us in demanding that the UK government act now to create and implement a comprehensive NHS care pathway for PMOS. Sign this petition to support equitable healthcare and help foster a future where no woman has to battle PMOS alone.

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Recent signers:
Joseph Arnold and 19 others have signed recently.

The Issue

For over 20 years, I have navigated a healthcare system that has consistently failed to address my needs, leaving me to fight a solitary battle against Polyendocrine Metabolic Ovarian Syndrome (PMOS) formerly known as Polycystic Ovarian Syndrome (PCOS). Despite being one of the approximately 1 in 8 women who struggle daily with this condition, I have been met with blame, neglect, and advice that, more often than not, contradicts the standards set by NICE guidelines. This marginalization is exacerbated by outdated practices that tie the quality of care to postcode lotteries and an overwhelmed health system that offers no viable options.

PMOS, a debilitating condition that affects countless women across the UK, remains poorly understood, woefully underfunded, and inadequately addressed within our National Health Service. The lack of a comprehensive, centralized care pathway for PMOS not only leads to unnecessary suffering but also perpetuates a cycle of inadequate treatment, misdiagnosis, and mental distress. Currently, the demand far outstrips the available resources, meaning many women are left without proper diagnosis, care, or support—an unacceptable status quo for a nation that prides itself on its healthcare.

Our call to action is clear: we urgently need the UK government to establish a new care pathway within the NHS specifically for PMOS. This initiative must encompass robust mechanisms for early and accurate diagnosis, improved access to necessary care and support, and, crucially, dedicated funding for research into effective treatments and screening procedures.

By prioritising this pathway, we can alleviate the undue burden placed on individuals and families, and empower healthcare professionals with better tools and protocols to manage this condition effectively. Investment in research will not only lead to breakthroughs in treatment options but also facilitate early identification and intervention, drastically improving quality of life for those affected.

We cannot allow the outdated system of postcode lotteries to dictate the standard of care. Every woman, regardless of her geographic location, deserves access to high-quality, evidence-based healthcare. Our health system must evolve to address these disparities and ensure that every woman is heard, acknowledged, and treated with the dignity and respect she deserves.

Join us in demanding that the UK government act now to create and implement a comprehensive NHS care pathway for PMOS. Sign this petition to support equitable healthcare and help foster a future where no woman has to battle PMOS alone.

The Decision Makers

UK Government Department for Health and Social Care
UK Government Department for Health and Social Care

Petition Updates