1 in 10 women have endometriosis. 1 in 10 women have Adenomyosis. Many of these women have both. Not included in these statistic’s but still a victim to both diseases are gender neutral & gender fluid individuals too. 

Endometriosis can be found EVERYWHERE other than the spleen.  Both crippling diseases listed on the top 10 most painful illnesses to have. Yet we struggle to be believed, we struggle to get support & we struggle financially.

A flare up can last between an hour to weeks of agony, in between most people’s DAILY PAIN. The current notion as to why theses are not classified as a disability is because everyone pain is different and some aren’t as severe to be classified as a disability. My solution to this is to create a spectrum from low to serve which is based off symptoms which your doctor can decided or a Gyne where you fit on the spectrum. This should not be done by the stage of Endometriosis or Adenomyosis because the stages do not correlate to the level of pain a patient is feeling. This will allow the patients with symptoms to get the support they need in correlation with how severe their pain is, their ability to perform daily tasks and the medications their on to make a decision on the support they can receive. Rather than putting everyone in one box. 

My name is Renée I started this petition because although my symptoms classify me as disabled my illness doesn’t! I spend most of my time in hospitals, at GP’s & in bed. I’m on opioids & hormones to help me function and I still cannot function to a reasonable human standard. I carry a heating pad, deep heat & extra medications to university with me everyday. My grades & attendance has been severely damaged because of this since my GCSE year. I’m now in my 3rd year studying law and I’m still fighting. I’ve passed out many times because of the pain, been stuck unable to move crying in public and in private spaces. I would have to go to the toilet to throw up during my lessons, lectures & at work because the pain was so bad. I would cry on public transport just wanting it all to stop.

It’s time we start supporting people in these communities allowing them access to disability payment schemes, access schemes & anything else that is put in place to help people with disability’s should be applicable to us too! Many people are denied any disability benefit and have to appeal multiple times to be believed. This is exhausting ! It shouldn’t have to be like this. 

Please sign this & share this. I guarantee someone you know is suffering in silence like I was. We need help & support. AND WE NEED IT NOW !