Dear Biogen Company Please Gift Kiana Compassionate Use of Spinraza She Deserves Treatment
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18-month old Kiana Ehsanifar is inflicted with Spinal Muscular Atrophy (SMA) type 2. The only medication that can save her life is Spinraza, a super expensive drug, which costs 750,000 USD! Kiana lives in Iran and Biogen company which markets Spinraza does not have any connection or contract with Iranian ministry of health at this moment. And the price of this drug is far far beyond anything Kiana's parents can possibly afford.
Kiana's family are working hard to do whatever to save their little one but without this drug nothing they can do will save Kiana. There are fundraising campaings currently ongoing:
If you do NOT have a FB account please use the following link to donate: https://www.childfoundation.org/page/kiana
Kiana deserves to be given a chance to live more days and years, and to have a normal life. She deserve compassionate use of Spinraza. It's not fair that she loses the critical time for treatment at this young age. Kiana is in desperate need of this medicine while she still has time, please provide her the treatment before it is too late.
Dear Biogen company, please gift Kiana compassionate use of Spinraza or at lower prices before it is too late. Please support Kiana's family so that this little girl can start her treatment as soon as possible. No kid in this world deserves to be left to gradually or eventually die. Please help saving Kiana's life.
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