Australians with Cystic Fibrosis need the drug Orkambi

The issue

It is time to support access to the drug Orkambi for people living with the most common mutation of cystic fibrosis (CF) - two copies of F508del.

A decision as to whether Orkambi can legally be made available in Australia will be made in March and the PBAC will meet at this time to decide whether to cover the cost of Orkambi.

We need the whole community to speak up and make sure these decisions are guided by the unique knowledge and experience of people living with CF. 
Cystic Fibrosis Australia (CFA) and the state and territory CF organisations are committed to ensuring people with CF have access to therapies and drugs that improve and transform lives. 

Our voices need to be loud and clear so please support CFA's petition for access to Orkambi.

Thank you for your support!

The team at Cystic Fibrosis Australia

P: 1300 232 823
W: cysticfibrosis.org.au
A: Rose Cottage, 2 Richardson Place, North Ryde NSW 

avatar of the starter
Cystic Fibrosis AustraliaPetition starter
This petition had 12,457 supporters

The issue

It is time to support access to the drug Orkambi for people living with the most common mutation of cystic fibrosis (CF) - two copies of F508del.

A decision as to whether Orkambi can legally be made available in Australia will be made in March and the PBAC will meet at this time to decide whether to cover the cost of Orkambi.

We need the whole community to speak up and make sure these decisions are guided by the unique knowledge and experience of people living with CF. 
Cystic Fibrosis Australia (CFA) and the state and territory CF organisations are committed to ensuring people with CF have access to therapies and drugs that improve and transform lives. 

Our voices need to be loud and clear so please support CFA's petition for access to Orkambi.

Thank you for your support!

The team at Cystic Fibrosis Australia

P: 1300 232 823
W: cysticfibrosis.org.au
A: Rose Cottage, 2 Richardson Place, North Ryde NSW 

avatar of the starter
Cystic Fibrosis AustraliaPetition starter

Petition Closed

This petition had 12,457 supporters

Share this petition

The Decision Makers

Jo Watkins
Jo Watkins
Responded
Australian people with CF really need this new drug.
Petition updates
Share this petition
Petition created on 28 January 2016