Petition Closed
Petitioning Chair, Trans-NIH ME/CFS Research Working Group Susan Maier and 7 others
This petition will be delivered to:
Chair, Trans-NIH ME/CFS Research Working Group
Susan Maier
Chief, CDC CFS program
Elizabeth Unger
Director, National Institute of Allergy and Infectious Disease
Anthony Fauci
NIH ORWH Director
Janine Clayton
NIH Director
Francis Collins
Assistant Secretary for Health
Howard Koh
US Secretary for Health & Human Services
Kathleen Sebelius
Director, CDC
Thomas Frieden

Apologize for not Responding Appropriately to the ME/CFS Epidemic

Bjørn Guldvog, Deputy Director General of the Norwegian Directorate of Health, recently made the following statement in response to a published study indicating the cancer drug Rituximab may be an effective treatment for ME:  "I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Other nations need to follow Norways's example.

Along with an apology, we ask the US to:

1. Double the current NIH funding for extramural research annually until it achieves parity with funding for similarly debilitating chronic diseases like Multiple Sclerosis. Priority should be given to research on biomarkers and potential pathogens as well as clinical trials. 

2. Take down information on the CDC's CFS website stating testing for pathogens and biomarkers is "experimental and theoretical" and that GET and CBT are appropriate treatments.


Letter to
Chair, Trans-NIH ME/CFS Research Working Group Susan Maier
Chief, CDC CFS program Elizabeth Unger
Director, National Institute of Allergy and Infectious Disease Anthony Fauci
and 5 others
NIH ORWH Director Janine Clayton
NIH Director Francis Collins
Assistant Secretary for Health Howard Koh
US Secretary for Health & Human Services Kathleen Sebelius
Director, CDC Thomas Frieden
I just signed the following petition addressed to Secretary of Health & Human Services, Kathleen Sebelius.

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Apologize for not responding appropriately to the ME/CFS epidemic.

Bjørn Guldvog, Deputy Director General of the Norwegian Directorate of Health, recently made the following statement in response to a published study indicating the cancer drug Rituximab may be an effective treatment for ME/CFS:

"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Follow the Norwegian Health Minister's example.

In addition, we ask that you:

1. Double the current NIH funding for extramural research annually until it achieves parity with funding for similarly debilitating chronic diseases like Multiple Sclerosis. Priority should be given to research on biomarkers and potential pathogens as well as clinical trials.


2. Take down information on the CDC's CFS website stating testing for pathogens and biomarkers is "experimental and theoretical" and that GET and CBT are appropriate treatments.