Allow people with feeding tubes to be FED!

Allow people with feeding tubes to be FED!

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Tube Feeds started this petition to angella pinna and

How many of you leave work each day to go and feed your child? Could you do it? Wait, you mean it might be hard to drop everything and go whenever your college student wants to eat? 

Few people realize that children and adults who receive funding from DSPD are being refused services at DSPD funded locations for the simple fact that they have a feeding tube. Why? The Utah Dept. of Health says if a DSPD-funded individual is being cared for by a DSPD-funded provider, staff are not permitted to touch the feeding tube or give feedings. Parents, friends or family must come anytime the tube must be touched (that includes venting the stomach, feeding-anything!)

The Dept. of Health considers tube feedings to be a skilled nursing service and DSPD funds can't be used to pay for nursing services! This means providers can't even hire a nurse because they aren't allowed to use those funds to pay a nurse! Parents are being told they must provide the feeding tube care or hire a nurse at their own expense! Providers are told they could get in trouble for doing this service, so they are simply turning people away. 

Over half a million individuals in the USA rely on feeding tubes to eat. Everyday, individuals with non-clinical backgrounds are taught to manage feeding tubes in the home, community and school setting. Insurance companies do not pay for a nurse to come to a home every time someone needs to be fed-why are DSPD and the Dept. of Health any different? Asking a parent to leave work is NOT a solution; it only creates a system where parents are forced into unemployment leading to further reliance on the government!

We want DSPD, DHS, the Utah Department of Health and CMS to:

  1. Allow non-licensed staff to be competently trained by a parent or nurse in providing tube care, including feedings.
  2. Require DSPD-funded providers to be passed off by the above individuals prior to administering care.
  3. Recognize that caregivers can (and should) be on-call to support staff if problems arise. Caregivers have the right to work and live without fear of whether their child is fed or not. Respect that right.
  4. Stop threatening providers with losing their state funding for feeding people
  5. Stop talking about someday addressing this problem and actually start doing something about it!

If you agree with this proposal, please sign our petition. 

0 have signed. Let’s get to 1,500!
At 1,500 signatures, this petition is more likely to get picked up by local news!