Pass the ALS Disability Insurance Access Act

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The ALS Disability Insurance Access Act (S.578/H.R.1407) will waive the 5-month waiting period for patients with ALS (Lou Gehrig's Disease) before receiving benefits under Social Security Disability Insurance.  Due to the progressive nature of this disease, waiting five months can be a matter of life and death. Getting social security benefits is the first step towards getting on Medicare which is sometimes the only way ALS patients can afford to live at a nursing home or get the expensive life-support equipment needed for living with ALS.  When we hit 100,000 signatures, the petition's creator, Scott Gingold, wrote letters to every member of congress to support this bill. The more people who sign this petition, the more our senators and representatives will listen to us. Please share this petition on social media. 


This petition was started by Scott Gingold, a 39-year old husband and father living with ALS. He is completely paralyzed and on a ventilator for breathing, and is fed through a stomach tube. He communicates using a computer that he controls with his eyes, which he uses to write bedtime stories for his daughter. He is an advocate for disability rights and uses his eyes to write letters to congress and create petitions to help the disabled community and make a difference in this world.

Scott currently lives at Gurwin Nursing Home in Commack, NY and for safety reasons is not able to leave the facility. His wife Marissa and their 7-year old daughter Darby visit often, but it's not the same as it used to be. Scott used to be able to help with chores and go places with them, but now Marissa is essentially a single parent. He does his best to stay involved in everyday decisions and talks to Darby on video calls. But Marissa is struggling without him. She works full time and is raising Darby by herself. Money has always been tight and it got worse when Scott had to stop working and medical expenses began piling up. A donation to their Go Fund Me campaign would help Marissa and Darby not struggle to pay bills and would also help secure Darby's future. Whatever you can afford would be greatly appreciated. Even if you can only give a dollar or two, if 50,000 people did that, it would help get them through a really tough time. Please visit their Go Fund Me: