Meet Mark.
Mark is my brother.  Maybe not my brother by blood, but my brother nonetheless.
Mark has ALS, but ALS does not have Mark.   You see, Mark is a fighter.  He is determined to beat this disease.  However, he needs help in order to do so.  Mark is a victim trapped in his own body like so many other ALS patients.    
 
ALS is a disease that affects everyone.  It is so far reaching.  Yes, Mark is afflicted with this dreadful disease, however it affects his family and his friends as well.  We are helpless in the onslaught of this.  We sit in shocked bewilderment as we see the ALSA do nothing to help these incredible people whom we love and cherish so much. 
 
There were two new bills introduced in October of last year , S.4867 in the Senate and H.R.8662 in the House that would make it so that Mark and others with fatal diseases could have access to potentially lifesaving therapies.  My question is WHY DOES THIS TAKE SO LONG?  October of last year may not sound so long ago to you and I, but to Mark, it is a period of life altering changes going on within his brain and body.  Every DAY is precious and every day that goes by is a day that is wasted.
 
NurOwn is one example of a medical treatment that has gone through clinical trials, yet the FDA refuses to release this medication!  Why??
Tofersen is yet another example.  AMX0035 is another. 
 
Mark will always be Mark.  Bright, loving, funny, loyal.  But Mark needs to be free of the constraints of ALS to fully live again!!  To walk his daughter down the aisle at her wedding, to be there at his niece’s wedding, to play soccer again, to go to the beach, to go fishing.
 
Please sign the petition to get Congress to pass this TODAY to allow Mark and his PALs (PEOPLE WITH ALS) to get access to these potentially life-saving treatments.  These PALS are our loved ones, our brothers, our sisters, our wives, our husbands.  They are PEOPLE who have the right to have access to these treatments