Kaysen turns 2! Still time for life-saving gene therapy if Alberta government acts fast!

Kaysen turns 2! Still time for life-saving gene therapy if Alberta government acts fast!

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Dear Minister Shandro, I support every Canadian baby having the best chance for life. Time is running out for Kaysen. You are the only person who can make sure he gets Zolgensma gene therapy for treatment of SMA before his second birthday. 

Zolgensma the first gene therapy that could provide a one-time forever treatment for Spinal Muscular Atrophy, a severe life-threatening rare disease. Zolgensma is coming to Canada but not fast enough the drug has to be given before 2 years of age. 

Time is running out for Kaysen, he turns 2 on July 17…

For more information on Kaysen's story please watch this short video: https://youtu.be/CnrVeISn8-c

Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing.

For more information about Spinal Muscular Atrophy, visit: curesma.ca
 
Please support Kaysen’s fight by signing the petition and send the request to Alberta’s Minister of Health Tyler Shandro.


Thank you for your compassion and support.