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Petitioning Cabinet Secretary for Health and Wellbeing Alex Neil MSP and 2 others

A public enquiry into the lack of clinical care for Pauline Toms by NHS Forth Valley & NHS Greater Glasgow and Clyde

Paulines Condition

Pauline has Primary Immune Deficiency, Pan-enteric dysmotility, Diverticular Disease, chronic Asthma, Bronchiectasis, Type 2 Diabetes and Renal Reflux.

Pauline had her large intestine removed and a stoma created in October 2012 (in Forth Valley Royal), following years of misdiagnosis, poor treatment (including 2 MRSA infections caught in hospital) and refusals from several consultants/surgeons to give her treatment. This success of the surgery was short lived when the stoma herniated in early 2013. Again, surgery to fix the hernia was initially refused, until a request for another surgeon was made by Pauline. In May this year Pauline underwent a second operation to repair the hernia, but after only weeks hernias began to appear, part of the stoma fell off due to infection and Pauline suffers constant sickness and incontinence on a daily basis.

Her consultant made the decision not to operate to repair the damage which is across the whole of her abdomen now. In addition, although her stoma bags fail to work due to Pauline only producing brown or green water, the suggestion by NHS Forth Valley Royal staff member for her to use “puppy training pads from Poundland” haven’t been well received by Pauline.

Pauline had to pay privately, to gain an accurate assessment of her condition and was given the new diagnosis of Pan-enteric dysmotility, which effectively means her whole digestive system has shut down. She has been told she requires URGENT surgery to re-site her failing stoma and repair all 7 hernias. She was referred to Glasgow Royal Infirmary, but the consultant there doesn’t accept her diagnosis from one of Scotland’s top Professors and has refused to operate. Pauline cannot eat. She is severely dehydrated, but has been told to cut back on fluid intake. She has blockages throughout her small intestine, her abdomen is extremely deformed and enlarged and she is rapidly losing weight. So how can any human being survive like this, let alone someone with complex conditions Pauline has? If infection from the massive blockages throughout her digestive system and failing stoma doesn’t kill her, the high risk of strangulation of the bowel will.

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