Approve my Myoelectric Prosthesis
November 2, 2016, I had a traumatic amputation of my left hand. I lost my hand while trying to put out a firework with water. I didn't know that a firework with a wax fuse could not be put out with water, the water actually accelerated the explosion. Exploding my whole hand. I am amputated at my wrist. Prior to the accident, I was in my third year studying Industrial Technology at the University of Louisiana at Lafayette. I was an active member of the Pride of Acadiana Marching Band and could play almost every brass instrument, guitar and piano. I also loved to cook and workout. Not only did I lose the ability to do the things I love but I also lost the ability to do things I need to care for myself. This will be the first year I will not march in the marching band. Because of this, I lost my band scholarship that paid for my housing in college. I thought I would have a prosthesis by now, but due to ongoing issues with our health insurance, my life has been put on pause. I am covered by my Step- Father's insurance plan (United Healthcare) and my secondary insurance (Gilsbar) provided by my Father. United Healthcare is saying it is not medically necessary, even though my Doctors and Occupational Therapist all say I would thrive with the Bebontic (myoelectric) prosthesis and is medically necessary. With as much insurance as I have you would think I wouldn't be having so many problem. My secondary says they can't pay because my primary insurance is saying it's not medically necessary; even though a team of doctors who know me and treat me say it is. I am back at college and trying to manage life as best as I can. I struggle with everyday things like tying my shoes, brushing my hair, dressing , cleaning and cooking. There is a list of things I can not do without assistance. Not to even mention how difficult my engineering classes are in college cause I need two hands. A basic body powered hook is not going to give me the grip patterns, and the ability to control how hard or soft I hold something. Having this prosthesis would give me my independence back. This prosthesis would boost my self confidence and optimism toward the future. Which I truly believe would dramatically improve my quality of life and the ability to take care of myself. My Mother and I have been fighting with my insurance for over 9 months to cover what they are supposed to cover. I just want my life back. If you would like to donate please do it here. Anything will help! Thanks! https://www.gofundme.com/a-prosthesis-for-my-brother
Approve my myoelectric prosthetic hand
I am 27 years old and my name is Ashley Riojas. In May 2014, I noticed a lump in my right palm and had a biopsy done I was told I had a stage 2 sarcoma, a rare type of cancer. I went through six intensive high grade chemotherapy sessions, and at several points during that period, I felt like I was going to die. Even after all of that chemotherapy, my right hand ended up having to be removed just above the wrist. It was the only way to be sure the tumor was fully gone, and that the cancer wouldn’t spread. It was hard to lose my hand, but I now have hope -- Hanger Clinic: Orthotic and Prosthetic Solutions have introduced me to a myoelectric prosthetic, which works off the muscles firing in my right arm. The device gives me the flexibility to perform a wide range of daily activities with improved control, accuracy, and ease-of-use. When the clinic asked for approval for a prosthetic from my insurance company -- United Healthcare -- I was denied. The reason they gave me was that the prosthetic I am requesting exceeds medical necessity. Please help with anything you can. I would love to try and raise the money on our own. Donation page My life has been changed. I struggle to do so many things that most people take for granted: cleaning my own home, getting dressed, picking something heavy up, cooking my meals, just to name a few. I have been slowed down in all aspects of my work, including having to wear a headset so I can type with my only hand, typing slower because I am only using one hand, and having to learn how to write with my left hand. I need a hand … a helping one, and an actual one.
Our teen daughter deserves a day without pain. Help her get needed Autoimmune treatment.
A single mosquito bite changed my daughter Liana’s life. What began as a mild case of meningitis, encephalitis, and viral arthritis morphed into a collection of Autoimmune disorders that have plagued her since she was 9 years old. Unfortunately, her best chance at treatment (and a normal life) is the one our insurance company, UnitedHealthcare, refuses to cover. Our once healthy, athletic daughter now experiences debilitating abdominal pain, insomnia, headaches, whole body pain/neuropathic pain, nausea, painful joints, and severe fatigue. She’s also 40 pounds heavier due to illness-driven metabolic issues. The physical and emotional impact of her autoimmune condition is significant. She has trouble sleeping due to the dysfunction of her autonomic nervous system, also known as Dysautonomia. Dysautonomia is often accompanied by Gastroparesis or a dysfunction of the nerves of the gastrointestinal tract, causing slow and painful digestion. Social impact is also difficult: friends don't come to visit and when they do, they don't know how to talk about her condition or understand its full impact. UnitedHealthcare coverage policy requires conventional Autoimmune treatments to be used first before any other treatments are considered. The first line treatments for Autoimmune neuropathies like Liana’s are Cortisone and Lyrica. However, these are not ideal treatments for teenage girls and cortisone has significant long-term effects on the body, including weight gain. Intravenous immunoglobulin therapy, IVIG, or biologic drugs like Rituxan, on the other hand, are less destructive on the body's internal systems, however, these two treatments are very expensive ($15K-$30/Treatment and up to $100K/year. These alternatives though begin to work right away (IVIG) in improving the quality of life for many young women who have autoimmune conditions. Rituxan takes a bit longer for the body to respond to. Our family began petitioning United Healthcare for IVIG treatment last summer. By early 2017, we had exhausted all of our appeals for the treatment, and Liana’s condition has become worse. We are now petitioning for the biologic drug Rituxan. It has been 4 years since Liana has had even a single day in which she’s felt normal and healthy. She only leaves the house once per week -- for doctor's appointments. At the very least, she deserves to have hope for a future and life without a daily pain. Liana's middle name is Hope. Please sign and share this petition asking UnitedHealthcare to allow IVIG or Rituxan treatment for Autoimmune disorders. Young people across the country, like our daughter, are suffering every single day -- and UnitedHealthcare has the power to reverse this condition, provided they act promptly to these autoimmune conditions. One to two years after diagnosis is much too long.
Que le devuelvan la Hacienda Santa Monica a los niños pobres de Panamá.
En Panamá hay medio millón de niños pobres, 200,000 niños viven en extrema pobreza. Muchos de estos niños solo tienen una madre que sirve como Madre y Padre a la vez. Estas guerreras Panameñas se levantan todos los días a las 4am con una sonrisa en cara para tomar un pésimo sistema de transporte y llegar a un trabajo donde les pagan mal. Ese es el Panamá que vivimos, el Panamá de dos países, el Panamá de los que tienen dinero y el Panamá de los que no tienen. Se acabo la clase media. Se acabo la justicia, y se acabo la solidaridad. Vivimos en un país donde las leyes se aplican para los pobres y no para los ricos. Pero de vez en cuando llega a Panamá un hombre rico, con un corazón grande. Esa es la historia del Sr. Charles Lucom, un hombre Norte Americano que hizo su plata con mucho esfuerzo y sudor en Panamá. Y cuando murió, decidió dejarle en su testamento a los Niños Pobres de Panamá un regalo. Les regaló la Hacienda Santa Mónica. La Hacienda Santa Mónica queda en Antón y colinda con Buenaventura y Juan Hombrón. La Hacienda tiene alrededor de 700 hectáreas de terreno (que valen más de $800 millones) y se le fue regalada a los niños pobres de Panamá por el Sr Lucom como dice su testamento. Como los niños pobres de Panamá no cuentan con un representante legal, el Sr Alberto Vallarino y su pandilla de abogados deciden asaltar a los 500,000 niños pobres de Panamá y robarles la Hacienda Santa Mónica. El Sr Vallarino con sus secuaces utilizaron el corrupto sistema Judicial Panameño y cambiaron el Testamento del Sr. Lucom y se quedaron con Hacienda Santa Mónica. Queremos que se haga justicia y le devuelvan la Hacienda Santa Mónica a los niños pobres de Panamá como lo quiso el Sr. Lucom en su testamento. Gracias, Los niños pobres de Panamá.
Protect Mothers Rights During ChildBirth! #MothersVoice
You can donate for my surgery here https://www.gofundme.com/p8vcag I'm very grateful that you took the time to listen to my story. I am not doing this for myself alone, but for all women who have suffered at the hands of negligence. I understand that we all have our own hardships and injustices. I also understand that doctors and their teams make mistakes, therefore it's not about the medical staff but about the system. The system that's in place does not provide rights for women in childbirth. It does not allow even a chance for the medical staff to resolve their mistakes with the patient. The system in place only allows recovery of $250,000, thousand dollars which means that it is economically impossible for any mother to hold a hospital and staff accountable for gross negligence. During these past 18 months, I've connected with many hundreds of mothers who went through the same horrible experience. They too are embarrassed, to share intimate details, like I did. I've consulted over 150 attorneys who declined to take my case. Behind me are a multitude of mothers who were similarly damaged. I am fully aware of how difficult it is to bring change to systems in the United States. However, if you spend your 30 seconds by signing the petition, you'll provide an opportunity for women to have the ability to hold hospitals and doctors accountable for gross negligence.By signing this petition, you are requesting that the recovery ceiling of malpractice law be lifted for gross negligence on a mother giving birth.By singing this petition you will protect us, mothers, who don't have rights under this system.If you are a citizen of California of voting age, please sign this petition If you are a citizen of another State, please sign this petition and also start a petition in your home state if there are malpractice ceilings where you live.Together we can make this change! Every year in the United States, 65,000 women with pregnancy or childbirth nearly die. This is by far worst record in the developed countries. Approximately 28,000 babies are born with birth injuries each year. In spite of it all, hospitals refuse to carry responsibility and women in childbirth remain unprotected. We would like to change that on a national level. Every Voice Counts! My name is Kristina and I would like to share with you how my life turned into a nightmare due to negligence at Mercy San Juanhospital in Sacramento, CA. Perhaps my story will help many to get justice with similar experience. On September 30th 2016, at 3:33am, I gave birth to our wonderful son Moses. But memories of my labor still bring many tears. My pregnancy was very normal and the anticipated labor was supposed to be the same. It was my first long waited pregnancy and I did everything possible for my baby to be healthy. When I was around 36 weeks pregnant, around 1:00am I arrived to the hospital with contractions. I knew that I was in full labor because my contractions were 2-3 min apart. I requested epidural right away, they prepared me but the wait for the anesthesiologist took 2 hours. Obviously, it was too late. At 3:15, I was fully dilated with all of the medical personnel ready to assist me with pushing and welcoming my baby. On the fourth contraction, when the head of the baby was visible, someone ran into the room to get my doctors assistance for another patient. ABSOLUTELY EVERYONE ran out of the room leaving me with contractions and urge to push. I was abandoned by medical staff as I was pushing my crowning baby out. Their negligent act endangered my baby and me. My husband was in shock, ran out after them begging them to come back. I was in so much pain and terrified that my baby would fall on the floor, and no one would be there to catch him. As a result, the repercussions of their act ended detrimental. My husband returned without help. In the meantime, my strong urge to push was only getting stronger which led to the beginning of my tearing. When the medical team returned, without any examination of the changes, they took my legs and started pushing on my stomach, making me tear to the 4th degree. They extend through the anal sphincter and into the mucous membrane that lines the rectum. In a few seconds my baby flew out of me and the doctor caught him in the air. My baby was very small, only 5,6lbs, which makes it impossible to injure the mother with a weight this small if proper help was administered during labor. Immediately, they told me that surgery under anesthesia will be performed and any future children would be c section only. After I was discharged, the stitches started to fall apart. The wound became dangerously infected. I did not trust Mercy, so I went to Sutter Roseville. When they examined me, they were shocked about my story and to see how my recoverywas failing. After a few checkups with my obgyn who is affiliated with Mercy, I was promised that everything will heal and that I just need time and patience. A year and a half passed, the suffering and pain continue. On January 2018, after many tests I was informed that I need full reconstructive surgery. I am in constant pain because I have severe nerve damage. Pain episodes return me to the emergency room for intensive pain management. I’m constantly on pain killers. Because of the negligence of Mercy San Juan, I became disabled. Because of my immobility, the impact on my husband and family cannot be understated. I’m terrified of my bathroom trips, every sneeze or cough bring me fear. Any of these things could lead to rupture and emergency intervention. We tried talking with the hospital, I begged them to operate me, but they don’t want to be accountable for their negligence. However, they recognized that medical personnel left me alone. The only answer I get from them “We will not be talking to you without an attorney”. I asked to investigate my case, and they assured me they would, but it never happened. They consulted their own obgyn who expressed their own opinion, obviously to protect themselves. No investigation was performed. Many attorneys that I spoke to refused to take my case. Their response was “we can only protect a child, it’s almost impossible to protect mother” I only have one option now, and it’s to ask for your help. With your help justice can be served, and I will finally be able to have reconstructive surgery. My life can get to normal, and I can enjoy motherhood fully, without fear and pain. Only with your help, we can protect mother’s rights during childbirth.
Quit Playing Games with Our Hearts! Payers Should Allow Access to New Heart Medicines.
National Association of Insurance Commissioners: Tell Insurance Companies to Quit Playing Games With Our Hearts! Allow Americans Access to Groundbreaking Therapies That Prevent Heart Attacks and Strokes. All of us know someone who has suffered from a heart attack or stroke. It’s terrifying for everyone involved. The statistics are daunting and only seem to be getting worse: An estimated 102 million adults have high cholesterol, with more than 35 million of these at high risk for heart disease. About 5.1 million suffer from heart failure, and roughly one in three Americans has high blood pressure. But there is hope. In recent years, innovative medical therapies have emerged – medications that reach more patients, better control symptoms or reduce side effects that complicate treatment. Some can produce powerful results for patients who may not respond to traditional therapies. One of these therapies is called a PCSK9 inhibitor. PCSK9 inhibitors work by extending the lifespan of a receptor on the liver that clears LDL, or “bad” cholesterol. Patients are at increased risk for cardiac events such as heart attack and stroke because of extremely high levels of LDL. Clinical trials data show that PCSK9 inhibitors can lower LDL cholesterol more than older therapies like statins and can also reduce the associated risks of heart attack and stroke. But health plan coverage has been slow to accommodate these breakthrough treatments. In some cases, plans are outright denying patients access, despite physicians’ wishes…because keeping patients off these therapies seems better for the insurance company’s bottom line. Numbers don’t lie. Here are a few examples: In Alabama, Mississippi and South Carolina, Blue Cross Blue Shield denies patients PCSK9 inhibitors at rates of 61%, 100% and 83% respectively. In Georgia, Express Scripts and Anthem both deny 73% of patients who seek a PCSK9 inhibitor. In Kentucky, Anthem denies 72% of patients. In Michigan, Cigna denies 64% of claims. As patients wait, the threat of stroke and heart attack looms. Please sign our petition to call upon the National Association of Insurance Commissioners to fulfill its mission to assist state insurance regulators in serving the public interest. That means raising awareness about the alarming rejection rates that qualifying patients face across the country. These rates won’t change unless we step up. That person you know who has high cholesterol may need this therapy one day. Let’s let insurance companies know that we still value patient-centered care in America.
Get access to ALL the medical help, if that's what you need
We need to change the system with the kind of coverage we can get under our medicaid insurances. Having different types of medicaid insurance, should not change the coverage we have from our doctors. Furthermore, things such as service and therapy dogs should be covered by our insurance for those in need. When there are real medical problems, it is very hard to find the medical help we can get without excessively paying out of pocket for each doctor. There are many insurance plans that fall under medicaid. However, when someone is looking for doctors, they would have to either keep switching their insurance, or pay out of pocket for the coverage that is needed. Furthermore, there are many things insurance would not pay for altogether which causes us the problem to be more prone to be in debt. I believe service and therapy dogs should not have to cost thousands of dollars to be obtained. Someone who may be in a manuel wheelchair for example, would need help going up and down the sidewalks, switching on and off the lights, and opening doors. A service dog is something that is trusted to perform activities that people with disabilities would otherwise need the help of another person to do. Many times not having someone you trust near you, would ultimately require you to trust strangers. A physical disability causes the incapability to run away from danger, and therefore, they become a target. A therapy dog helps with things that medication cannot do such as, to over come Post Traumatic Stress Disorder (PTSD). Service and therapy dogs should therefore not be considered a necessity. Those with disabilities may have the means to board a public bus, but traveling to or from the bus may be an issue. (Not to mention that there are not many trains out there that are wheelchair accessible, and even if there are, it may be very difficult to control a wheelchair when the brakes are not good ones such as in a manuel wheelchair.) We The People, need help with medical expenses. We need all doctors to accept ALL medicaid insurances. We the people should have all medical help covered by our insurances and not have to be in debt for medical expenses that would otherwise be covered. All those people who want to feel both safe, and independent should have the services that fall under the "medical" category be covered. This should apply to both veterans who put their lives in danger to keep our society safe, and non-veterans who would otherwise feel more comfortable to go out to work and feel that they too, can work and make a difference in society. Please sign and share!
Bring Women With Endometriosis Awareness Campaign into schools worldwide by Carla Cressy
Women With Endometriosis is a charity campaign and petition currently being bought into parliament in the U.K. Founder - Carla Cressy, 26 from Essex has suffered stage 4 Endometriosis, Adenomyosis, frozen pelvis disease and IBS. Since Carla’s 9 year battle to receive a diagnosis she has under gone three major surgeries and is now awaiting further surgeries causing her life to change dramatically. Carla who has both the experience and knowledge is keen to raise awareness, build a team with her sisters to support one another and bring Endometriosis into Education along with raising the profile of her own charity in aid to give back to those who suffer and help those who are yet to follow in their path. Carla has designed her own Endometriosis Awareness school briefing and posters which are already being displayed within GP surgeries in the U.K. With support from her local MP Sir David Amess In aid to help women to be heard, learn the signs and push for a earlier diagnosis.
IVIG Treatment for Brandon
United Healthcare refuses to pay for my sons medical care. He needs ivig treatment so he can get back to good health. Here is his story. Brandon Scott Durr’s PANDAS Story Brandon is my only child and is 9 years old. The last few years have been very hard on him. In January 2016, Brandon was dianoised with PANDAS. PANDAS is defined (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) occurs when strep triggers a misdirected immune response results in inflammation on a child’s brain. In turn, the child quickly begins to exhibit life changing symptoms such as OCD, anxiety, tics, personality changes, decline in math and handwriting abilities, sensory sensitivities, restrictive eating, and more. For more information visit http://www.pandasnetwork.org Before being diagnosed Brandon had many symptoms but we had no idea what we were dealing with. His first system was constant eye blinking around the age of 5. Then once starting Kindergarten, he developed all sorts of fears and thoughts. Our doctor told us this was normal 5-year-old behavior. Then he began to get bullied in kindergarten and things started getting worse. How I wish I had known then what we know now. As time went on we decided it was best to homeschool Brandon because his fears and movements had started to get worse. Again, the doctors said it was normal. I had not seen many kids this age has body movements and it be normal. We homeschooled Brandon the next year and made him repeat kindergarten. By Christmas of 2015 he had developed another tic (body movement) which was moving his mouth open and closed so much that he caused his mouth to be strained and sore. We took to a new doctor and blood work was done to show that he had several infections active and past infections. He tested positive for strep even though we had no symptoms. Once diagnosed with PANDAS, he was placed on an antibiotic and seemed to get much better, but it was short lived. In the beginning of 2017 we reached out to Doctor K in Illinois, who is a PANDAS expert, who seen Brandon and confirmed that he did have PANDAS. Doctor K recommended IVIG (Intravenous immunoglobulin). IVIG treatment allows bad cells to be replaced with good cells in hopes that it will reset the immune system. Brandon had 1 IVIG treatment in April 2017. Insurance would not cover it because they felt it was a risk and may not work. Brandon improved greatly after IVIG treatment, but it only lasted about 6 weeks. After that all the symptoms returned. Brandon needed more that one IVIG treatment. We had to borrow, sell what ever we could to get enough money to pay for the first one he had which was $15,000.00. Fast forward to this year and Brandon has over 150-200 Tics (vocal and physical) and at times can’t function through a normal day. He is homeschooled on going now since his immune system is compromised and if he is around someone sick he will get even worse. We’ve been through restricted eating where he has lost weight for fear of dying if he eats and gets choked. He has eye movements, throat clearing, hand movements, head movements, leg movements, belly moving in and out movements. Brandon has so many fears that he can’t be in a room by himself, he can’t go to the bathroom by himself or even play outside. We know IVIG works but we can’t afford it. We’ve already sold our home with plans to get a new one and move relatives in for extra help. I have left my job because of the mental stress on me and the care that my son needs. Our doctor even wrote notes to say Brandon always must be in the care of parents. He begs to have a normal 8 (almost 9) year old life. He begs every day for IVIG because he knows it will make him better. How do you tell your child you can’t afford to make him better? Right now, we have his new doctor who is in Carmel Indiana. We travel 2 ½ hours each way to get him seen. Dr Scott has ordered IVIG treatments monthly to help the immune system reset itself. Without this treatment Brandon will continue to get worse. PANDAS causes brain inflammation which in return causes all the movements, OCD, ODD, etc. I need help to get my son the help he needs. United Healthcare denied this treatment. Brandon needs this treatment monthly, so he can get back to some sort of normal. I sit and watch my son beg for treatment. We have videos of all the movements and of him crying begging for help. What gives United Healthcare the right to deny him his treatment. Please help us give some exposure to his case so maybe we can pressure insurance. If you are interested in the videos I would be happy to share them with you. We are open as well to be interviewed. I did inform United Healthcare that I was going to every outlet I could to get them exposed. Each treatment now is $17,000 and he needs at least 20 of them. My husband and I can’t get any help because my husband is employed at General Electric so they think we are made of money. Please help me be able to tell my son that we can finally get treatment. I want to see my son well. I am afraid he is going to give up eventually and stop trying. He is taking all sorts of supplements and will be on antibiotics for years. This is currently his third year on antibiotics. Please help me bring hope back to him. I will be happy to also share blood results to show the infection or anything you might need. Thank you for taking time to read this. If nothing else, please pray for us because every day is a struggle. Night time is full of so many tics that he can’t get to sleep because his body won’t stop moving. Looking in his beautiful brown eyes and knowing I can’t afford to help him just hurts my heart. I am crying as I write this. Insurance denying this has caused such a loss of hope for our life’s.